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Hi , I am new here,

I’ve been diagnosed with cancer. Malignant metastatic carcinoma, it started with my tonsils, .don’t know what to do 

  • Basbas, so sorry to hear this...I'd say the first thing to do is to try to remain calm (not easy I realise).

    I've been on here now for around eight and a half years and the stories of survival and very positive outcomes outweigh the bad probably 49 to 50; it's a hard road but loads of us will help you through whatever is thrown at you.

    Welcome, though obviously you'd rather not be here.

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Hi, I’m trying to stay calm, but it’s so hard.  I had CT , MRI and biopsy, waiting for PET scan. 
    cannot sleep, thinking about diagnosis . I’m angry with my GP , had symptoms in June last year, did not have lumps on my neck…

    worrying it’s to late now 

  • Helllo Basbas

    I’m Jo . I was diagnosed with Cancer  today , Oropharynx  .  I know what you are going through right now .  I am also awaiting a PET scan now.  You are not alone .  You will find  great support here and I am going to be here for the foreseeable too .   There is so much support here from those experiencing the same or have been there and can offer advice , reassurance and guidance.

    Jo

    x

  • Hi Jo

    thank you,  

    yes I hope this is the best source for dealing with  it. I did to much Google though. I feel like I going mad . 

  • Hi Bas bas and welcome to the community. Like the other guys have said sorry you're here but as you are it's a good place for help and support. I remember those early days and really know how you feel.

    Please leave Google alone. The best places for advice are your team and here. Remember, this is all new to you but your team does this stuff every day and is good at it.

    I presume you have tonsil cancer that has spread to your lymph nodes. Try not to worry too much. Your glands are doing what they are designed to do. Stop the cancer getting any further. I think the classic presentation of tonsil cancer is neck node enlargement so you are not alone. Tonsil cancer is eminently curable and as Mike said there are lots of people who have survived and thrived. Some stick around to help others most move on, cancer maybe not forgotten but hidden away in memory, to live normal lives.

    Hang on in there Basbas. Stick around and we will all help you through

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Basbas, sorry you have had to join us on this site, we all know how you feel, it is a terrible thing to be told, you have cancer. However there are many of us who have had the treatment and come out the other side, and are here to tell the tale. If you have any questions, just ask away on here, someone will always come back with an answer if they can. Try to stay off google. All the best

    Regards Ray.

  • Hi,I reading the letter from my consultant again . It’s saying that I got post-nasal carcinoma with metastatic neck nodes. 
    again read from nhs web : it’s rare cancer ???

    going to Stoke tomorrow , PET scan … 

    sitting in my office and doing nothing but thinking 

  • Hi Babas. Welcome from me I’m Hazel 3.5 years tonsil cancer with spread to 7 lymph nodes. I’m happily living my life I was 61 when diagnosed. As others have said keep iff Dr Google too much unregulated info in there. Stick with us on here. Honestly this is the worst time the waiting and not knowing. Everything you’ve said so far resonates with all of us. We were all scared if the unknown. My blog below might help you when you’re ready. There’s link is to other s there as well. 
    rant at us we never judge we’ve been there. 
    when you’re ready tell us a bit more about yourself where you are how old are you make or female ? We’re a nosey lot  Lol. 
    I had 35 radiotherapy and 2 of planned 3 chemo and I’m still here riding my bike. Oropharyngeal cancers respond well to treatment keep that thought in front of head. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/