Hello from the US

FormerMember
FormerMember
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My husband just got out of the hospital from 3 operations to remove a cancerous lymph node on his neck.  The cancer was from his lingual tonsils   He has had a rough recovery and still has a feeding tube.   He goes in for radiation and chemo next week.  
i am wanting to hear from people that have had the radiation and chemo treatments. 

  • Hi Henry and welcome from across the pond

    I had lingual tonsil cancer and had six weeks of RT but no chemo. It's a difficult painful treatment but doable a day at a time. 

    There's little to notice straight away but my throat got prickly by the end of week two and by the end of week three I had a nasogastric tube because I couldn't swallow . It stayed in place for 8 weeks and no doubt saved my life. I managed to lose only 5lbs in weight and went on to make a fairly speedy recovery.

    Remember, pain can be managed by taking analgesics by the clock so you are not always chasing it. There is a variety of anti sickness drugs to cope with the nausea; there will be something to suit, and a positive mental attitude makes for an easier ride. This cancer, especially if caused by HPV which most are, is eminently curable .

    I have a blog with a little detail, link at the bottom of my post.

    It would be worth your while have a look at one of our member's profile where he has written a pretty good diary of his chemoradiation.

    Mark's Diary

    Best wishes

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi welcome to our small community group. I am 3.5 years post radiotherapy for tonsil cancer with several affected lymph nodes plus had 2 x10 hour chemo sessions. Dani has covered most things. My blog is below. I too had n g tube fitted at end of week 3 I had it fir 6 weeks in total. 
    Any questions just ask. Treatment is hard I was 61 when diagnosed if I can  do it anyone can. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Henry,

    I went through chemoradiation for cancer of the nose.  The treatment is tough, but doable.  The nurses and radioligists will help and guide your husband all the way though the treatment, so tell him to talk to them about anything he is worried about during the treatment and they will try to find a solution.  Tell him to say strong and posiitive.

    All the best to you and your husband.

    Lady66H
  • Hi Henryo

    Your very welcome to this small community...all of us here have been through a similar journey...it's not an easy road but highly doable...and many of us have returned to a relatively normal life 

    As many will say...stay off Google as it will scare you and mis inform you...go to every appointment with your husband as I found that as the patient you rarely take the information in..try and keep your husband's fitness up as that really helps and stay as positive as you can as that can get you through.

    Good luck and keep us up to date

    Chas