Hello, I’ve had breast cancer twice, had radiotherapy both times. Im having radiotherapy now after a madibulectomy for oral cancer. I’ve been suffering with nausea almost from the start of radiotherapy and also have a terribly sore moth because of ulcers making it almost impossible to get food down because of the pain. My radiotherapy after breast cancer was nothing like this, I didn’t think it would be this bad. Has anyone else had to cope with these side effects. I know cancer care nurses make these possible side effects very clear to you but I didn’t think it would be this bad especially struggling to eat. I’m finding it very difficult to cope. Just knowing someone else is finding it as hard as me would help.
Hi Petunia, welcome to our little community.
Radiotherapy to the mouth has awful side effects. We all of us have been through tough times with the treatment so know how you feel. How many weeks are you having and how far have you got?
Most centres do give you either a proactive stomach feeding tube or a reactive Nasogastric one when you need it. I had my NG tube in from the end of week three for 8 weeks. It was the only way I could eat and it saved my life.
My mouth was full of ulcers and I was on long acting morphine with Oramrph and paracetamol by the clock through the day.
Have you been given anything to ease your mouth? I had Gelclair, Caphosol, Difflam and Antacid Oxetecaine
Tell us a little more if you are up to it and we can help where we can
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Petunia sorry you’ve found yourself on here but you’ve come to the right place sadly radiotherapy to our risk areas is pretty tough I had 35 radiotherapy and 2 chemo treatments. Unfortunately what you are going through is par for the course but make sure you have adequate pain relief and keep taking it by rote I had a n g tube fitted at week 3 I outcall
my medication water and feeds through it As Dani says tell us a little more if you are comfortable doing di we’re a small friendly group who help each other
Hugs Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Petunia, it seems that the therapy affects us all to different degrees. I managed the pain but the nausea completely floored me and became totally reliant on Fortisips via a RIG tube. There seems to be a range of medication available to help with the nausea and I think you have ask what options are suitable for you. In my more cynical moments I wonder if initial options are based on price and not efficacy.
My nausea continued for months and even resurfaced during a recent bout of COVID. Hopefully your MDT team will advise.
All the best.
- John
Hi johnk55
sorry to hijack this thread but I see you mention having covid. I have not had covid at all yet. Am fully vaccinated and around 5 months after treatment. I must say I am dreading catching it as I really don’t know how ill I will be. I am recovering well at the moment. Thankyou
lizzie
The latest information is that even people with cancer and in treatment respond well to vaccination.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Petunia and welcome.
I think most people who have radiotherapy for head and neck cancer suffer similar side effects to what you're experiencing to some degree.
Have you spoken to your team to let them know how much you're suffering? They should be able to prescribe medication to help or change meds if they're not suitable for you.
I was prescribed Oramorph, soluble paracetamol and ibuprofen, Difflam mouthwash, Oxetocaine and Antacid Oral Suspension and Scandishakes. Not forgetting Laxido to prevent constipation! Lots of other meds also available to help with ulcers.
We've all been through it so don't hesitate to post if you need support or advice.
Linda x
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