My son has cancer in his head (not brain but soft tissue) - he has given me no details

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He's in his 50's and has been told it is terminal - I have no 'in depth' details. I know that he has had various treatments (radio/chemo) over the years but the last scan was bad news. However The Marsden have suggested he consider a 'Proton treatment'.  I wondered if anyone had anyone had any experience of this? 

  • Hi SwimWalker. Welcome to our community. So sorry to hear such bad news. There are a couple of people here who have had proton as a first line treatment 

    All I know is that Proton beam is still radiotherapy but it can be more finely tuned to avoid normal tissue. So in that respect it can be used in a palliative setting. after ordinary xray radiotherapy has been used. 
    Will it be to ease symptoms? 
    I hope the Marsden can do something for him. 
    Best wishes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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    1. I got the relayed info totally wrong. He's actually going to a clinic in Reading tomorrow - I haven't spoken to him face to face recently as he gets tired very easily, it's a Whatsapp life. He seems to be thinking that it's a new type of treatment. Anyway I expect I'll get an update in a few days. 
  • No worries. Let us know how he gets on. Fingers crossed 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge