New and would like help

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If anyone can help with there experience on inner cheek cancer and lymph nodes removed from neck also cheek skin graft and a temporary tracheostomy  I would be really grateful. 

  • Hi Bev and welcome to our group.  I can offer advice on the neck dissections having had 2.  Fire away with questions on that aspect.  Whatever you do don't Google the operations as the vast majority of what you will turn up is outdated and really not relevant to modern treatment.

    Others will be along soon that have experience in the other areas.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Peter

    Thankyou for your response. I'm totally crushed it's my 30yr old son that as been diagnosed with inner cheek stage 2 cancer he and his father dosnt want to discuss it the attitude isl lets get with it although I know inside my son is really worried. Hes given his wife concent to speak with his consultant I just  need to read  success stories of this type of cancer I'm trying to stay strong   but inside I'm broken 

  • Hi Bev. Sorry you’ve found yourself on here. We’ve a lady who has been posting on behalf of her son he’s a bit older than your son. Will tag her hopefully she will pop on know it was cancer indude cheek area. Please keep off Dr Google info on there as Peter sats is so out of date. Cancers do respond much better to treatment now days  please try not to stress. 
    if yiu see this maybe you can pop on. 
     I am 3 .5 years post radiotherapy for tonsil cancer with several affected lymph nodes. 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks for the update.  Always difficult when it is a child that is unwell.  I know as one of my sons has a tumour and we went through all the emotions you are going through right now.

    On the neck dissections, in most cases these are easy to recover from.  My surgeons were really good and, although they eventually removed most of the lymph nodes on one side, you really have to look to see the scar and I have suffered only relatively minor long term side effects.  There is the potential for some fairly major nerve damage.  This will be discussed with him, but the surgeons are skilled at minimising anything wherever possible.  Within a few weeks I was relatively recovered and 18 month on I suddenly realised I could do most anything I wanted to.

    I think the other elements of his treatment will hit him far harder than the dissection.  Keep with us and encourage your son to join up if he feels he wants to.  There will be plenty of tips on recovery to help him along.

    Peter
    See my profile for more details of my convoluted journey
  • Thanks for your reply it's always reassuring to hear other ppls outcomes and recoverys on trying to grasp anything positive and ppl that have had similar procedures 

    • Hi Peter when it's your child it dosnt matter how old they are you always wish it was you going through the procedure. His wife is going to speak with the surgeon tomorrow to clarify exactly what there going to do. I think this will help to overcome some fears but I know it's a long rd thanks for all your reassurance