Head and neck

FormerMember
FormerMember
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Hello to all , just joiining this group to help me understand and also hopefully help others with my experiences on the path of Radio and Chemotherapy to a neck lump and throat diagnosis, starting treatment soon, going for radio/mask fitting next week. Scary stuff but a must . Thanks Ozzer

  • Welcome Ozzer. It’s not easy but prognosis is good. Stick with us we’ll help where we can. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Ozzer and welcome.  Please stick around and ask any specific questions relating to the treatment.  I only have had surgery so far so can't really help outside of the generalities although there are a few common side effects along both routes of treatment.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Ozzie welcome from me as well it’s not easy but if I can do it anyone can.. Any questions just ask someone will always get back to you. 
    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Ozzer and welcome from me too - you'll find great support here.

    Just a word of advice over the mask fitting.  Do make sure it is comfortable.  It has to be tight fitting to ensure you are in the exactly the same position each session but if it feels too uncomfortable please mention it to the radiographers at the time so they can make minor adjustments at this stage.  Some people like to have the eyes cut out of their mask.   

    Allthe best for next week.

    Linda x

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thankyou ,already feel like I have made a very good choice in signing up to this group for peoples experiences .

  • FormerMember
    FormerMember in reply to LindaWT

    Thankyou Linda for the advice on mask fitting Thumbsup

  • FormerMember
    FormerMember in reply to PFJTHS

    Thank you peter

  • You have. If you’re in this fix anyway there is lots of advice and support from people who have been there, survived and thrived. 

    Thankyou ,already feel like I have made a very good choice in signing up to this group for peoples experiences .

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • FormerMember
    FormerMember

    Ozzie,

    I’ve had surgery, chemo & RT for SCC in cheek/ jaw. Process sounds scary but you don’t realise how strong you are until you are  faced with a process like this  - you’ll get through & be stronger for it. I always had music playing when I was on the RT bed, each sweep of the scanner ( in my case 2) is only about 45 secs, the rest is setup & chitchat with the RT team. The healthcare professionals are so good at managing you through it, take all their advice. Stick with it, we need to hear more about your success story on the blog, we are all pulling for you. Steve

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you Steve