Morning all,
Sorry, not been on for a few days. So my treatment began Friday afternoon, I'm having pembrolizumab. Really glad to get things moving. It seems like ages since I was first diagnosed (oh wait, it was).
So far so good. No immediate side effects, bit of a stiff neck but I had that anyway, likely from tumours bearing down on nerves in the neck apparently. Paracetamol or Ibuprofen usually sorts that out if it gets too uncomfortable.
At the moment then life is going along fairly normally. Got to be careful when it comes to social contact although to be fair haven't we all at the moment? I'm eating normally, keeping hydrated, couple of spoonful's of Lifemel honey a day, protein shake for breakfast and at my wife insistence approx 8 gallons of carrot juice a day. Like I say, other than that little lot I'm eating normally :-)
Not sure about work at the moment. I'm a domestic electrician by day which involves a little social contact but if I am to carry on then I need to avoid scraps, cuts & bumps, all of which I'm world renowned for received in a normal working day.
If I could feel like I feel at the moment during treatment then it's going to be a doddle but I'm pretty sure things are likely to start happening the further down the line I go. We shall see, I'll keep you posted.
Anyone else on here having a similar experience to mine? Would love to hear from you.
Great to hear you’re keeping on top of things. Take care of yourself. Let us know how you get on
Best wishes and have a peaceful joyous Christmas
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I've not experience immunotherapy myself so can't help there but...
at my wife insistence approx 8 gallons of carrot juice a day.
...I can relate to, my wife had a thing for beetroot juice; I felt like a kid, "Have you drunk your juice?" 
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Hi! I started pembro as well about 8 weeks ago (for metastasised cancer from tonsil to both lungs), and will have my third infusion next week (nice Xmas present 
)
I've had zero side effects so far, which is great. It's a weird one though; I feel like everything is normal, partly due to the wide spacing of the pembro infusions such that it doesn't affect day-to-day life, yet have no idea if it is actually working and stabilizing the spread of tumours. I don't have a date for a new scan yet though...
Ans
