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FormerMember
FormerMember
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Hi guys ....new here thought i would see whats its like lol...No one in my house gets how im feeling and i understand that.

I am on my 5th week of radiotherepy out of 6 and waiting on my second chemo but my god i have never been so sick in my life lol plus other things but really just want to pack it all in coz ive had enough.

I am a big bloke who never looks on the negative side until now lol.I lost my mum to cancer 3 months ago.

I just wondered how anyone else felt during treatment eg eating drinking swallowing voice etc etc

Cheera

  • Hi DLK and welcome to the community. If you're OK with the chemo that's brilliant. Some people get few side effects.

    As for the RT, you won't notice much till the end of the second week when the effects start ramping up. Keep your mouth clean and keep on top of the pain. It's not a walk in the park but doable. I managed at 67 and so will you. Just don't be brave..tell your radiographers how you're feeling and coping. They are your link with the rest of your team.

    Keep off Google...that will scare you and it's largely inaccurate.

    Stay with us and there is always somebody around to offer tips and support.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • FormerMember
    FormerMember in reply to Beesuit

    Thank you for replying. I havent spoken to anyone but doctors and while The Christie are wonderful its taken me all my nerve to speak to someone with cancer who are going through it too. 

    I was only diagnosed on Oct 2021. After months and months of misdiagnosis and failed operations. I have had major and disfiguring surgery, which, for a 44 year old woman is hard enough. Its this surgery that has affected my speech. Im just holding out some hope that nothing can be as bad as what I've just been through. Not sure I could face it if it were much worse.

    I have to though. Big girl pants on.

  • Oh so so sorry to hear that. Tell us about yourself if you feel up to it. This group is a great support. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • FormerMember
    FormerMember in reply to Beesuit

    I had what was diagnosed as a branchial cleft cyst. This was after a CT, ultrasound etc etc. Was told nothing to worry about, its not cancer. 6 months of drains, ops, and finally facial paralysis was I sent for an MRI and PET. There they were, 2 tumours. They actually show on that first CT too. 5 hospitals later I ended up with Manchester Royal having major surgery because of the amount of times they messed about with me.

    I know have a huge portion of my thigh on my face and neck.

    They did a brilliant job though. Its just been hard.

  • Hi DLZ 77 a big welcome from me as well we’re all here to support each urged. I’m 3 years 3 month post radiotherapy for tonsil cancer with several affected lymph nodes now happily living my life. I too was lucky with chemo no nausea conk sickness. The radiotherapy got me though by end if week 3 I was having n g feeding tube fitted. You’ll get there we all do in the end. Sorry to hear about your surgery The Christie is sn excellent cancer centre. Any questions just ask. 
    yes big girl pants do come out from time to time. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/