Hi. I am new to this.

  • 7 replies
  • 156 subscribers
  • 1051 views

Currently suffering with cancer in my salivary gland

  • Hi Rob60 and welcome to the group.  I've not had that particular H&N cancer, but plenty on here have - so they will be able to answer any specific questions you may have.

    H&N cancers are eminently treatable with good success rates, but the various options are all tough and have an extended recovery period.  However, there are plenty on here that will testify to a good quality of life post recovery.

    It would be great if you can say a little more about where you are in your treatment, then people can respond appropriately.

    Stay with us for support and, the best advice ever, is stay off Dr Google.  Most of the information on there is out of date with regards to modern treatments and outcomes.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Peter,

    I haven't started treatment yet.

    Have had all the different types of scans and biopsies.

    I will hopefully meet to discuss a treatment plan next week.

    I am obviously apprehensive and want to get on with it. 

  • Hi Rob 60 welcome to our small community group. As Peter says there a few on here snd am sure someone will pop along. I am 3 years post radiotherapy for tonsil cancer with several affected lymph nodes.Keep iff Dr Google trust your team and us on here. The waiting is the worst part once plan us in place things move along quite quickly. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Waiting is probably the toughest part of this.  Once you have a treatment plan it just goes. 

    The best advice at this stage is do as your clinical team says, raise any issues you have with them - no matter how seemingly insignificant - and take your painkillers even if you feel you are OK.  Pain has a way of creeping up on you.  There are no heroes here!

    Peter
    See my profile for more details of my convoluted journey
  • Hi Rob and welcome from me too. I think we would be able to help you better once you know what’s going to happen. What sort of salivary gland cancer is it. From my recollection I think a lot of them are treated surgically. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Rob60 and a welcome from me too.

    I finished my treatment for base of tongue cancer in August 2018.

    Linda x

  • Hi Rob I’ve been doing a bit of research came across this from Christie’s at Manchester ot might be a bit early for you but it’s there if you need it. 
    I worked on more I knew better I could handle it. 
    https://www.salivaryglandcancer.uk/get-involved/podcasts-and-videos/

    Hazel . remember you don’t have to watch it. 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/