hello excuse the typing im not very good with a computer i have recently been diagnosed with tongue cancer its the base of the tongue in the throat doctor has me booked in for RT for 7 weeks starting 15th november im trying to be positive and would welcome any advice and support i understand theres a hard time ahead and im trying to be positive i do have lots of love and support from friends and family but i think ppl who go through this would be a big help thank you for reading be positive please thank you
Hi and welcome. BOT SCC is exactly what I had. T2N0M0 HPV +ve Diagnosed in 2018 with treatment starting in the December. I had 6 weeks of RT which finished towards the end of January 2019. So I'm nearly three years clear and in remission.
The treatment is tough but doable and has a high chance of cure.
The RT doesn't hurt and takes only around ten minutes a time. You won't notice much till the end of week two when your throat will get sore and your neck a little red. It does ramp up after that so you will find it difficult if not impossible to eat. I had an NG tube placed at the end of week three for nine weeks. It saved my life. Please do use your radiographers as your first port of call as they will liaise with the rest of the team to make sure you are kept as comfortable as possible.
The pain is manageable but to keep on top of it it's best to take it regularly by rote.
Don't worry. In a few weeks you'll be through the other side.
Keep in touch here and you'll get plenty of help and support as you need it.
Keep off Google. The best places for advice are your hospital and the folk on here. Trust your team. All this is new to you but your doctors do this every day and are good at it.
No question is silly or daft. Ask away. Somebody will help
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
