New Diagnosis Nasopharyngeal squamous cell carcinoma T2 N0

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Helo recently been diagnosed witb Nasopharyngeal cancer starting chemo and radiotherapy next week

Feeling very anxious and scared

Been told i will have a PEG inserted 3rd week of treatment

Any advice much appreciated

Will i loose my hair

Thank You

Wendy 

  • Hi Wendy and welcome to the community. So sorry you have found yourself here.

    Radiotherapy to the head causes all sorts of problems in the mouth  making eating difficult which is why you are being fitted with a feeding tube. These effects kick  in at around the end of week three. Try no to worry. Your medical team will give you all the help they can and pain is manageable. There are lots of tips to get you through so do come back for support when you need it.

    There is a current thread running  HERE 

    And if you look HERE you will find some more

    Please please stay off Google. The best places for advice and support are your team and a group like this one.

    Will i loose my hair

    That depends on what Chemotherapy you have.

    Cisplatin can cause minor hair thinning and radiotherapy often results in some temporary hair loss at the nape of your neck if the beam goes there.

    Trust your team. This is new to you but they do it every day and are good at it.

    All the best

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Wendy welcome to our group. Can’t add much to what Dani has said aoart frim I went through treatment with a guy Neil and his cancer was the same as yours and he got a successful recovery. We still meet up. Keep off google.  I had cisplatin chemo my hair went lank and the beam from radio took a crescent shape from back. It soon  grew back. 
    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Wendy, good luck with your treatment, it is not very nice but it is very doable, many of us on here have done it, and you will too. It's a good thing that you are having a PEG fitted, if eating becomes a problem, the PEG will take the worry of that away. If you want to ask any questions just come on here, someone will always help if they can. All the best to you.

    Regards Ray.

  • Thank You so much 

    Been for a dental assessme t this afternoon which went well emphasising how important it is to look after my mouth teeth and gums Grimacing

  • It certainly is during treatment I must have spent hours each day on oral  hygiene. Even now 3 years in i religiously brush 30 mjns after eating wherever it’s possible. 
    you’ll get there cuts not easy but it’s doable there’s lots on here done it. We will all help. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Wendy welcome to the group, I had chemo radiotherapy 17 years ago for tonsillar cancer, the treatment is quite rough there's no point pretending it isn't but it is doable as everyone on here is testament to and there is light at the end of this tunnel.

    I had Cisplatin, it's not pleasant but the PEG will be your friend as you will come to realise as time goes goes on. My hair became much thinner but it came back with avengance once the treatment had finished.

    Just keep remembering that this is only a short period in your life and you will get through it with the help of all your amazing team of  professionals who are people that make it their life's work to help and treat people like us.

    I wish we could help you to feel less anxious and scared but at least you know you are not alone now and it always helps to talk to people who actually know what you are going through. 

    Keep in touch and good luck with everything xxx

    Trish