Nasopharyngeal cancer

Hi MPF,

I was diagnosed with sinus cancer last year. Not sure what you have been told going forward with treatment etc. My cancer was too big to operate and the only thing I could have was chemotherapy and radiotherapy. I had 2 cycles of TPF chemo which is 3 different types of chemo and then had 35 fractions of radiotherapy. I have been told that there is no lump, but they want to keep an eye on my frontal sinus, I am under ENT and also skull base for the frontal sinus. I am now waiting to see ENT on Tuesday as they will be having their MDT meeting which will include the skull base consultant to decide what the best course of action is for this frontal sinus. 

Hi MPF and welcome to our "club".  It is not a site where I have cancer, but there will be someone who has been through treatment for this particular site along shortly.  In the meantime read some of the information and stories on here - much of the treatment for head and neck cancers is very similar in style and issues raised. 

Most people survive and thrive after what is a tough treatment for all types of head and neck cancer.  They have a new normality in life after treatment and it takes some time to recover and reach that new norm.

Just remember we're all here for you as you go through and past treatment!

Hi MPF Welcome ti the club none of us wanted to join I’m 3 years post radiotherapy for tonsil cancer with several affected lymph nodes. On the first day of my treatment I met a guy with nasopharyngeal cancer we all he and friends his treatment was very similar to mine and he also got the same end result as me no sign of cancer. Everyone reacts differently ti treatment suffice to say it’s not easy but it’s doable I was 61 when I was diagnosed now living my life to the max. 
I have a blog details below when you’re ready it may help.

Any questions just ask someone will get back to you. The waiting’s  the worst part once treatment starts  everything falls into place. One tip please keep off dr google the stats are well out of date 

Hazel 

Hi MPF

Welcome to the community.

If you type Nasopharyngeal Cancer into the search box at the top of the page you will see that there are quite a few recent posts.You could start there. How far down the road are you? Have you a treatment plan in place?

No treatment plan yet. I’m meeting team for first time next Thursday. Apparently that is when I will be told what to expect. I’m still in shock to be honest and just can’t believe this is happening. Feel fine one minute then tears the next. My emotions are all over the place. 

Emotional turmoil is normal. I just tried to keep busy and kept telling myself that there was nothing I could do about it. Don’t Google. You’ll drive yourself mad. Good luck and let us know how it goes. 

Hi yes this period is the worst it’s the fear of the unknown. As Dani says keep busy and keep off dr Google it will freak you out.  Stick to us on here 

Hugs Hazel xx

I haven’t started any treatment yet but exhaustion normal?

If course it is. Cancer makes us tired anyway. It’s a physiological thing and often the first thing we notice retrospectively. Worry knocks you about too. You will feel better once you know what’s happening 

Thanks that’s good to know. I think your right. Google has too much information that can be misleading and can fill you with frightening information. I think I’ll stick to this group x