Awaiting full diagnosis

Hi brilliant I had roast lamb  dinner when I got home. Hope he enjoyed  the bacon n egg butty. Remember the painkillers he will

mire than likely need them sooner rather than later. If he’s on co  codomol or codeine word if warning  on constipation . Nice subject but it’s a common one for all of us when we were on painkillers. Laxido or movicol are the best. 
ket us know how he us fingers x results there for m d t. Mine was right tonsil so if it’s there welcome to the club. Ask h p v status as well as it does make a difference on how tumour reacts. 
hazel x

Thanks for the hpv tip Hazel. I’ll add it to my notebook of questions. Roast lamb dinner sounds excellent- maybe I’ll make him one next Sunday. He seemed to be in quite a lot of pain by the time he got to bed so I’m worried as the nurse and Peter on here have said day 4 or 5 the worst. :( We have codeine. I’ll get some laxatives tomorrow with the other prescription maybe. I’m glad they think they have found the primary I must say. X 

Hi Cat plus do you have prescription exemption form as cancer patients we get free script s for 5 years yeah !!! Well if under 60 you do I got them feee anyways. 
yes ask about h p v status. 
Yes the pain will ramp up until about day 10 I only had tonsil soft  palate and tonsil wall biopsies   My tonsil was left but radiotherapy soon got rid of it by melting that and my uvula ( dangly but at back if throat). Try to make sure he drinks if only sips I found herbal tea soothing . Fingers x for primary being found. If it’s not tge team will know what to do

Hazel x

Thanks Hazel 

MDT appointment tomorrow 

any advice on questions I should ask that may have been missed from my list? 

im so nervous I cannot sleep x 

Good luck for your meeting today. Let us know how you get on.

Hi cat Good luck . Take pen snd paper anythjng you don’t understand ask again don’t let them brow beat you. I had 9 in my consultation incluyme my husband and daughter. We were in 45 min I didn’t leave until I knew everything.

didthey find primary 
Ask re chemo and radiotherapy 

Dental check 

mask making 

will a feeding  peg or n g tube be fitted ? 
when will treatment start 

h p v  yes or no 

Let us kniw how you get on when you’re ready to 

final tio walk in talk head held high you can do this. 
Hazel 

Hi Cat

Good luck with the meeting today.  Unlike Hazel I only saw members of the team on a one to one basis.  Firstly my consultant who talked me through my treatment and then various other people who explained parts of the treatment in more detail.

Make sure you have a contact number for your partner's Clinical Nurse so that if you do think of any other questions after the meeting you can contact her/him.

Linda x

Yes like Linda I was never present at an MDT. They are weekly meetings where all the specialists  meet to discuss all the  patients in their care. 
When I got my diagnosis I had my CNS oncologist and surgeon in the room. Then I got whisked off by my oncologist to go through my consent form then off to the dentist to gave my teeth checked. That was it for the day. The next appointment was to get my mask made and to have a planning CT. Then there was the wait for RT to start. I did have a Macmillan meeting to see if I needed any counselling and there were dieticians in there somewhere. 

Hi Linda i thjnk I had do many as it was the oncologist a  surgeon my ent consultant ( from a different hospital ) Macmillan nurse oncologist register and a trainee. Plus us 3 it was a tight fit. 
the m d t had taken place before hand

the surgeon wanted to explain why he wasn’t operating due to lymph node being too close to spine  

Hazel xx

RadioactiveRaz said:

the surgeon wanted to explain why he wasn’t operating due to lymph node being too close to spine  

And that’s a great point too. There don’t seem to be as many neck dissections being done are there?