Hi all

FormerMember
FormerMember
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Just been diagnosed last Thursday. Not really sure what to expect. Don't know much at the moment. Talking to surgeon on Friday. Not very good with this computer stuff either. 

  • Welcome Barrie. We were all here in the same boat at one stage and understand how you feel. You’ll get lots of help along the way. Tell us more about yourself if you feel up to it. The first tip I can give you is to stay off Google. You’ll frighten yourself to death. Once you have a treatment plan in place you’ll have a goal and feel better in yourself. Best wishes. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Barrie welcome to our small community group nine of us wanted to be here but we are a friendly bunch. We’ve all had the same thoughts as you’re experiencing niw. LikecDani says we will help if we can pop a bit more info on  when you’re ready 

    it’s not all doom and gloom I’m 3 years post radiotherapy for tonsil cancer with several affected lymph nodes happily living my life. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Barrie and welcome to the forum.

    I was diagnosed with base of tongue cancer and finished my treatment in August 2018.

    You should get some more information when you see your surgeon on Friday.  Are you taking anyone with you to the appointment?  It is helpful if you can as another pair of ears may pick up something you miss or ask questions you havn't thought of.

    You'll find lots of support and useful tips here if you need it.

    Linda x

  • Hi Barrie Welcome to the club. Easy as it sounds I would just go with the flow and see what your surgeon says. You really are in the best possible hands of many experts who do amazing things. All the Best Regards Minmax

  • Hi Barrie. Sorry you find yourself in here but hang around and there’ll always be someone who can advise and help. No question is too trivial. We’ve all of us been there to some degree or other. 

    The early days, waiting for a diagnosis, treatment program etc, are some of the worst but, as Min says, try to go with the flow and don’t over-worry.  You’re in the system now so that is a very good thing. You’ll find that once they’ve decided what’s what things will move along pretty quickly. Wishing you all the best, M.

  • Hi MarkEl Hope your keeping well etc . Its wasn't to long ago we were in the same situation as Barrie. All a bit of a whirlwind really . All the Best Regards Minmax

  • Hi Min! Good to hear from you. I’m feeling good thanks. My neck still feels like shite some days but  look how far we’ve come in since our diagnoses!  You’re right - it’s been a bumpy old road the past year or so but we’re through the worst of it and getting back to ‘normal’. I see your posts now and again and remember our early days. Hope all is well. All the best, Mark

  • Min and mark. Great to see you both back thriving. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Nice to see you too Dani! And thanks for all the effort you put into this group. (Oh dear - this is in danger becoming a bit of a love-in! Joy)