Hi I am knew here, was only diagnosed with
Hi and welcome to our little community. Sorry you’ve had to find us but you are in the right place for help and support.
We are all different and react differently but I can give you a broad description. The first two weeks are largely uneventful. From there your mouth and throat will get more sore. You might not be able to swallow much towards the end. Do you have a feeding tube placed? I had a nasogastric tube put in at the end of week three and had it in for nine weeks. Your neck skin will burn a little or a lot. You’ll get quite tired. Radiation effects peak 2/3 weeks after treatment ends. After that you will get slowly better but not straight away. By six weeks I was feeling out of the fog and by twelve I had turned a real corner. These two milestones are fairly common.
All these events are manageable so do let your radiographers know how you feel. They are your first port of call and will liaise with the rest if your team, my advice would be to not be brave and don’t Google. There is much alarming and inaccurate stuff there
The places for advice and information are your team and fellow sufferers here.
I have a blog linked below with some information
You could also look at marks bio here
https://community.macmillan.org.uk/members/markel
You are in treatment remarkably quickly after diagnosis so that’s a bonus.
Best wishes and keep in touch as you progress
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi welcome to our community we’re all here to tell if we can. Dani has summed it up perfectly. I am 3 years post treatment for tonsil cancer with several affected lymph nodes am now living life tk the max. Pop on as snd when
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Holby. Any questions just ask one of us will always try and get back to you. Between us we can usually cover most things.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi There and Holby I finished treatment in January and just got a letter saying I dont have too see my nurse again which is great news. Just take one day at a time and think you will get through this. Believe it or not but loads of people are telling me I look really well lol . All the Best Regards Minmax
Hi Holby
( a favourite programme, how am I going to do without it? )
so pleased you feel a little better. It’s a pretty ghastly treatment but effective and taken a day at a time doable.
I’ll add loss of taste and thick sludgy mucous clogging up your mouth to the general symptoms. Again manageable.
Pop back when you need us and take care
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi I finished my radiotherapy 3 weeks ago. I agree with all of the effects that other people have talked about but would add that I felt sick and nauseous for most of the time. I also was hospitalised on two occasions for constant vomiting. Thankfully these symptoms have disappeared since I completed my treatment. I have also experienced some hair loss, not a lot but I have a bald strip at the base of my neck from ear to ear. Luckily I have fairly long hair so it's not noticible.
The only advice I would give is that you take things day by day and you will get through. Good luck and take care of yourself.
Hi Dani
Sorry for the delay in replying, I have had so much going on, not just with the cancer, I ripped one of my nails right off. Thank you for the information you have given me, I am so glad to have found this group. I will Definitely keep in touch
Love Arlene
You’re very welcome Arlene. Hope it all goes as well as it can for you. By the way have your doctors suggested there is any link between your crohns medications and the cancer?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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