Update on my first post

FormerMember
FormerMember
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Thank you all so much for your help,advice and encouragement,  its greatly appreciated .

I have taken snippets from each reply and come to the conclusion that I need to change the way I look at food. Instead of trying to get back to 3 regular 'normal' meals a day which is putting pressure on me, I'm going to plan changes in my eating habits and concentrate on eating what I can when I can orally until I'm eating enough calories to maintain my weight. I have to come to terms with the fact its a slower process than I hoped and push myself a little more to get to my goal of PEG removal. 

All the best to you all 

Take care .... S

  • Hi....that sounds like a good attitude. Food is Fuel ....just typed this in another reply. If you can swallow it, get it down.

    I have a friend who has just come out of some seriously hard treatment that involved having a tracheostomy tube in place. That is out now but his recent visit to his dietician was a revelation. She gently but firmly pushed him to eating food he couldn't have envisaged he could manage but he did. I suppose it's partly the safety of a clinical environment ....but he got there.

    Recovery is a step bt step process, some forward, some back. Don't be disheartened by the backward steps or by reports of other folk flying ahead of you. You heal at your own pace and by Christmas you'll be tucking slowly into Christmas Dinner. Well done for keeping body and soul together this far.

    Best wishes

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi As Dani says baby steps. I too know the person Dani referred to I actually met up with him snd his wife last week. We were in our way back from wedding and called in to see him.A few days later he had dieticians meeting snd it’s fine did him the power of good I told him the food is fuel mantra worked for me along with the eat smaller meals I some days had 6 tea plate sizes of food as a big dinner plate is off putting. Eat to live for a while not live to eat will get you there 

    good luck 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi,

    Good to look at it differently. I also went to smaller plates, also use a small fork and teaspoon. Just meant not over faced by a full meal, which looks like too big a challenge. Also easy to get bored and abandon it, so little and often helps. As Dani says don't worry about what others are eating. There were days I would think crickey that's way beyond me, why am I not at that point. Keep us posted on how you are doing. Take care, R 

  • I did exactly the same which worked really well for me so I hope you also feel the benefit.  

    I found (and still do but not to the same extent) that afer a few mouthfuls I got swallow fatigue which was the last thng I needed on top of everything else so smaller meals eaten more frequently was an enormous help.  Also, some sort of distraction such as watching TV was great for taking my mind off the eating process.

    Good luck.

    Linda x