First speaking about my cancer

FormerMember
FormerMember
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Hi all, 

This is the first time speaking about my cancer I’ve tried to stay strong and deal with it all on my own for a while but I feel I need to speak to others now as I am finding it hard!

I was 26 at the time and was diagnosed September 2019 with acinic cell carcinoma on my parotid gland it spread to my lymph nodes I had an operation and radiotherapy which went really well but everyday I still feel worried and anxious that something will come back. Is this a common feeling?

I work a lot and try and keep my mind busy to stop myself thinking about it but I know it’s the worst thing to do.

thanks 

  • Hi Mbard I still havnt told my whole  family or friends except my partner and two kids so you are not alone on that one. Feeling anxious and worried is normal . I have been crying because my partner of 30 years is leaving me so dying seems like a good option until I think straight. If the Cancer doesn't get us we could get hit by a double decker bus so stop worrying about it. Worrying gets you no where like a rocking horse All the Best Regards Minmax 

  • Hi Mbard and welcome to the group. 

    Many of us feel the same.  It is only natural.  Also it is only natural that some of us cope better with those feelings than other so.  I am Cancer Unknown Primary and they find the cancer then it goes only to be found again.  This is a very rare position to be in, but I do understand your concerns and fears.

    You will be on a 5 year pathway with checks at varying frequencies to pick up and possible reoccurrence.  I live from 6 week check, to 6 week check but my clinical team are really good at picking up changes.  Yours will be too.  Try to trust them and try to put the concerns as far back in your mind as possible.  If you can't, possibly you could speak to the hospital/GP about some support to get your mind to a more relaxed place??

    Peter
    See my profile for more details of my convoluted journey
  • Hi and welcome to our community. Peter’s reply is spot on. We all suffer recurrence anxiety and it’s normal. I could tell you how I’ve recovered and how well I’m living but that’s meaningless. It’s a period we all have to go through and some are better at it than others. 
    There’s no shame in getting some help from your GP even if that means antidepressants. 
    Life will return. I can almost promise that. 
    Have a read of this excellent essay from psychologist Dr Peter Harvey. It sums this very problem up beautifully 

    www.workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Post-cancer we are actually more likely to get any future cancer picked up quickly and dealt with at an earlier stage.

    Particularly if we are young, fit or without any obvious risk factors signs of cancer are easily ignored first time, either by ourselves or by the medical profession.

    Once we’ve had cancer we are either being monitored or are taken more seriously based on our history if there are any signs of a new problem.

    Given that you have been treated effectively let’s hope you don’t have any future reoccurrence, but no doubt you will be treated promptly if you do.

    It’s impossible not to have a degree of worry once we have had cancer, but actually anyone could get cancer at any time, and at least we have a heightened degree of awareness. But we really must try not to let that spoil our lives (I know easier said than done). 

  • Hi mbard 

    First of all.. well done for speaking about it.   This is a difficult subject and what worked for me might no be right for you. I saw someone close to me hide it away and in the end it caused major family issues that have never been resolved... when I was diagnosed...I made a conscious decision to tell everybody upfront.. that may sound rash but I didn't want people asking me why I looked like I did...and I felt I didn't want to have to explain what was happening to every passer by.  I think it helped me as people were very understanding of my situation. 

    As I say there is no right or wrong here 

    Good luck 

    Chas