Recently diagnosed with T1N2 BOT hpv cancer. I just want to say hi on this group.

Hi Lizzie oh dear you’re not having a great week. There are various anti sickness meds they can give you we are all started off on the cheapest ones. Hopefully they will give you another anti sickness tablet. I was so so lucky never felt sick all the wzy through. Fingers x you are home soon and next weeks chemo doesn’t floor you. Remember chemo is a top up to radiotherapy. Radiotherapy is the main course of treatment. I was due  3 x10 hour infusions but only completed 2 of them I still got the totalmetabolic  response which means treatment worked. 

Not everyone completed  the full course of chemotherapy see how you go and discuss with your oncologist if you need to. 
Hope you are home soon 

Hazel 

You poor thing. I was hospitalised after my first chemo due to sickness as they use the basic/ cheapest antisickness. They gave me something called Akenzeyo before my second chemo and weekly throughout my treatment and it was my saviour. There are lots of different antisickness tablets and I am sure one will work for you.  

Oh Lizzie, so sorry to hear this. Hope they sort it soon x 

Hi Lizzie,

Sorry to hear that the Chemo has made you feel sick.  I had the same reaction after the first two weeks of my treatment, I was so bad, I was kept in hospital for the remainder of my treatment.  I stopped eating and had a feeding tube put down my nasal cavity.  I was then referred to an other hospital and had a peg tube fitted in my stomach.  I can eat some foods, but not a lot, so I am fed overnight with liquid food and have ensures as well.  I hope you don't have to go through what I did, but don't worry, they will look after you no matter what.

Regards

Heather

I am out of hospital now but on strong anti sickness which makes me feel rough, but I can eat.  It’s been a tough week I am not going to lie.  I only have 1 more chemo in 3 weeks time.  

What is a peg tube? And how do they fit it? Lizzie 

Did you have anti sickness all the way through then?  I can’t seem to stop needing it at the moment.  Just makes me feel so spaced out

Hi Lizzie,

Was wondering how you were getting on. Good you are out of hospital. Sorry you have struggled so much with the sickness.

I had a peg - feeding tube direct to your stomach. It was fitted endoscopically under sedation. 

After treatment I couldn't swallow and relied on it completely for 4 weeks. It took me a bit to get used to it, but I am grateful I had it. During treatment some foods / medicines made me feel a bit sick, so I would sometimes use the PEG even though I was eating. I would get over faced with the soluble cocodamol & movicol, so pop them down the tube. Was also a lifeline for keeping hydrated when I could only manage sips of water. 

Rest well over the weekend, Ronnie xx 

Yes,  I am already having trouble with all meds.  My stomach just doesn’t like it. I can see that a feeding tube would help with meds snd hydration.  They fit them quite late at the Marsden apparently, so as to keep you swallowing long as they can.   Oh well, no choice in any of it I suppose.  Thankyou to everyone for support.  Lizzie

Don’t worry too much about your swallow. There are gentle exercises you can do. I think dieticians over egg the importance. If they could step into our shoes while they tell us to eat for as long as we can they might change their mind.