Tonsillar SCC With Neck Nodes

Former Member
Former Member
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Hi i posted here before but had to delete my account as it showed my name so apologies to anyone thats already replied

Im Male 53 With Tonsil SCC HPV Positive 

  • I love your race through the change curve...shock.. denial etc  I did that in the first weekend...to prevent months of beating myself up

    Can I laugh at that? Is that allowed? 
    I think we have to find some humour in all this eh? 
    I found my cancer and knew what it was immediately. My heart nearly stopped. That’s all the process I remember. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Yes stick to the n h s ss Dani says b u p a did  a friend of our chemo  st home but her firm changed insurance company’s after treatment do she had a bit of a run around as new company wasn’t as comprehensive on a few things. Love the whirlwind explanation shock denial acceptance. Now you need positive mental attitude well I did I know not everyone can be a glass half full person I found it helped me. 
    keep in touch good luck for Friday 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Mark,

    Tough decision about your business, buy sadly the right one to help you through the next few months. 

    Hopefully a couple of weeks after Friday and you should know your treatment plan. I didn't have the private option, but NHS have been outstanding. They know what they're doing and treatment was well coordinated. Must have had at least 60 people look after me, all bringing their own specialisms to the fight. Never once did I wish I had private once I'd seen a specialist. 

    Good to have gone through those stages. I imagine you just want to get on with it now. There may be times you gave to wait depending on treatment, but that is in your best interest so it is all planned to be successful. 

    Good luck this week, Ronnie 

  • To be honest humour got me through what is a difficult time...laugh away as it can only help

  • Former Member
    Former Member in reply to Chicotime

    It was incredibly hard closing my office door today, ive worked since i was 16.

    The harsh reality is this, 23 years in the forces, not eating properly (i dont like food), long hours, over thinking everything, too much alcohol, stress, and a period of depression because of my experiences in the RAF etc has probably led me down this path.

    Cancer has also cruelly shown me another negative, my mother rings me all the time :)

  • I felt guilty that my lifestyle...long hours.. traveling silly distances for pointless meetings... eating dinner in a petrol station on the m6 ... Alcohol ... somehow caused my illness..but in reality it was just my turn. Rather than wasting emotional energy on this I decided to focus on being positive and controlling the controllables...it's the project manager in me...the only thing I could control was my attitude and my walking...so that's what I focused on...not for everyone but worked for me

  • Hi Mark 

    I am so sorry what you write about closing your business today i and others will understand how you are feeling.  12 years ago I emptied  my drawer out where I worked as a receptionist at a job I loved and knew I was not going back to.

    For me I did beat myself up as why I had cancer, we live in an age of information and it is so easy to start to think why this has happened to us. My take on this now is that I was just unlucky,  and things  can just happen. I know science can now predict why some of us may be more susceptible to disease.

    When we are working, and earning a living and all the stresses that goes with life, these are the priorities we take at the time.

    I know the others here will be great at supporting you through this, I have a different cancer but we  all share lots of things in common. I had my cancer at 40 and am now 52.

    Hold on.  

    Best wishes

    Nicky

  • Former Member
    Former Member in reply to Sporty Nicky

    Hi, had my biopsy and in recovery now, the consultant just went home but the nurse said the surrounding areas are normal, confused slightly, they have removed the healthy tonsil and just taken a biopsy of the one with the tumour, it runs quite deep apparently,  but how will they eventually get rid of the remaining tonsil and why not remove the majority of it, why not leave the healthy tonsil  

  • Hi Mark my tonsil was just biopsied the remaining healthy one was also left. I was told by my consultant as I had spread to the tonsil wall and a slight spread to soft palate as well as several lymph nodes it was better to leave in situ and let radiotherapy do it’s job. Which it did I’m almost 3  years post radiotherapy. 
    Just keep on top of painkillers over the next week -10 days. The waiting  for histology isn’t nice we’ve all been there. 
    keep in touch

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Former Member
    Former Member in reply to RadioactiveRaz

    Hang on so he's Basically just removed a healthy tonsil for no reason