Lump in neck scc diagnosed

Hi Amanda firstly welcome to our small community sorry you have found yourself here. 
Next need your story’s like mine I found a lump in my collarbone 3 years ago it’s not as scary as you may be think v. I too had full body scan it’s usually so put any terminal thoughts away. 
I am now 3 year s post radiotherapy for tonsil cancer with several affected lymph nodes. The lymph nodes are doing their jobs so don’t stress I know you will but honestly now the waiting is the worst. 
Head and neck cancers respond extremely well to treatment . I won’t lie treatment is hard but I did it snd I’m a wimp  

next advise keep off Dr Google you will frighten yourself the info on there unless you know where to look can and us misleading to say the least. 
you’ve found us we’ve been there got t shirt. Etc. I’m now living my life to the fullest. I was 61 when diagnosed 

hope this  helps pop on with questions as and when. But please please don’t think terminal the full body scan us to check everything snd look for your primary mine was hidden in the tonsillar crypt. 
When you’re feeling up to it I have a blog with links to others it may help you snd certainly will help your family to understand what’s happening. 
Keep in touch 

hugs Hazel 

Plus Amanda on occasions they don’t always find the primary but more of that if you need it. There’s a few in here who that has happened to. There’s lots of different treatment s.  Try not too worry messy for me to say but I have been in your shoes it’s not easy xx

Hazel x

Hi Amanda and welcome to the forum.

The swollen lymph node in the neck is usually the first thing that prompts most people to seek.medical advice.  And then full body scans are the norm so please don't panic yourself with imagining the worse.

There are many, many of us that have been through similar and we're still here.

As Hazel says, do steer clear of Google, especially as you haven't yet had a full diagnosis so won't know exactly what you're looking for.

There's so.much first hand advice on this forum so any questions do ask or contact your team.  We all know exactly what you're going through.

Linda x

I had a swollen lymph node too Amanda. It’s been the most common early warning sign for a lot of us in here. My CT scan showed nothing, but the subsequent MRI showed something lurking in my tonsil. And that’s where the little bugger was hiding! It may just be very small, like mine was, which is relatively good news.
As above, don’t panic and don’t look things up on Google. Ask your team or people in here who’ve been through  it.  And be assured that these cancers generally respond extremely well to treatment. 
Keep us posted 

Hi Amanda. Try not to stress too much about it. The classic presentation of oropharyngeal SCC is spread to a lymph node in the neck and stop there, so what you have is the normal course of events. It’s highly unlikely the cancer has spread anywhere else. The primary will be somewhere in the lymph nodes in your mouth. It’s treatable and curable 

I’ll echo what others have said stay off Google 

The places to ask questions area your medical team and here. 
Best of luck. We will all pitch in with support once you know what the situation is 

Thankyou you have put my mind at ease, I had been on Google and convinced myself I only had a year to live, I'm so glad you have got through this this is such a positive site the first one I've found, I'm waiting on a PET scan now so hopefully some good news from that will update when I know more, thankyku for the support...Amanda 

Thankyou ,you are all amazing this is the first real support I've had as I don't want to burden my family with my thoughts and worries x

Thankyou , you are all so lovely and I'm looking more positive now I've seen so many people come through this, I scared myself on Google so putting that away now, I actually had a decent night's sleep last night since this happened, will keep everyone updated when I get the PET scan sesults..Amanda 

Thankyou , so many of you with the same thing and amazing outcomes, I'm thinking positively now and definitely staying off Google it scared the bejeezles out of me to the point I was barely functioning,  thankyou for your support, I will update PET scan results when I have it done, the waiting is a killer...Amanda

We’ve all been through it Amanda. I won’t say don’t worry as that’s unrealistic, but try to stay positive and take heart from those in here who’ve been through it and come out the other side.