Advice needed regarding eating

Mine has been a very gradual improvement Shell. In the early days I was waking every 30-40 minutes throughout the night to take on water as my mouth was dry as a camel’s armpit. My tongue would stick to the roof of my mouth and I had a nasty salty taste going on. 6 months later and I wake up maybe twice in the night and sometimes not at all. I still keep a glass of water or milk to hand if I eat something dry like a burger or pizza, but that’s all. My big bugbear at present is little bits of food, eg peanuts, getting stuck where my tonsil used to be. It drives me mad! 
Like most things with the recovery from this disease progress can be almost imperceptible. There have been days when I suddenly realised I could eat something, feel something or reach up for something  I just couldn’t have before. It’s soooo gradual! 
I’m not expecting to get back totally to how I was before but still I can see progress happening and things are a damned sight better than they were even just 2 months ago. 
As Aristotle said, “Patience is bitter, but its fruit is sweet”. 

Hi Michelle slowly slowly by 6 mo th you’ll notice a difference. I’m almost 3 years snd on occasion need an occasional swig of water but it’s rare at her than often. Some days bread needs an help do dip in soup. Dry mouth does improve again slowly I had auricular acupuncture which I swear improved my saliva xx

Thanks so much Mark. I know that I have a way to go but at least if I know to expect nothing much before the 6 month stage then I can accept that it is what it is instead of feeling impatient and wondering if it might be next week.

Very much appreciate your words of wisdom as always 

Michelle

Thanks so much Hazel.

It is really useful to know not to expect too much until the 6 month stage, at least that gives me something to aim towards and manages my expectations in the short term.

At what stage did you have the acupuncture? I am guessing it’s a little early yet for me to consider.

Appreciate your wise words as always 

Michelle xx

Can’t add much to the others but there is one thing. 
It is better to take a Tiny sip of something warm with each mouthful which acts like saliva to enable you to chew. Then you should need only another tiny sip to get it swallowed. That way you are not drinking vast amounts of water when you eat. 
Acupuncture here

https://todaymycoffeetasteslikechristmasincostarica.com/2019/12/21/acupuncture-the-experiment-has-started/

And here 

https://todaymycoffeetasteslikechristmasincostarica.com/2020/02/13/acupuncture/

I started my acupuncture nearly a year after treatment only because it took me that long to find anybody to do it. 
There is lots of research to show that it benefits patients right from the start of treatment. So if you can find somebody you can get a move on. 

Hi Michelle it took me ages to find one I was 9 month but you can start any time the sooner the better is the way forward. Remember you need auricular acupuncture. In s years time it will all be a mere blip in your life promise. 
Hugs H x

Thanks Dani

I will try a cup of tea or coffee as you suggest as see what difference this makes. I have only just started to be able to drink it, have been living on water only.

 I have looked at the conversations on the thread and they are very interesting so thanks for sharing.

Had a quick look on Google and there doesn’t seem to be anyone local offering the acupuncture but will speak to my oncologist because he might know of someone. I might also call some local providers as they might know also

Thank you for sharing, 

Michelle

Thanks Hazel 

I am on the case to find someone and get going so keep your fingers crossed 

I wish I could fast forward to this time next year lol but although I have a way to go, I have come so far in a few short weeks so trying to keep my head up and get through to the 4 month test result stage

This time last year I was indestructible so I thought!!

 Thanks 

M xx

We are indeed you will bounce back xc don’t even think about scan you csnt influence the results the treatment s done it’s work xx

h xx

Michelle, practitioners  all know each other so one can usually pass you on to somebody who can help. I simply sent out emails to all the addresses I could find. I was lucky enough to find a lady in the next town. She had been on a course to do it and I was her first patient.