Throat cancer 2 weeks in

Hi GSP and welcome to our little community. 3 weeks is usually when all the mouth problems hit and as you’ve found, eating is a real chore and will become impossible soon but take heart it’s doable. 
As you already have a feeding tube ask about a feeding pump at your next RT session. You can have all you food that way, you’ll maintain the weight you need to heal properly. The pumps are supplied by the companies that make the feed. I was fed overnight leaving me free to play with what food I could take without worrying I was getting enough. 
It’s better to take your pain relief by rote regularly too rather than waiting for breakthrough pain. If you’re not coping that way tell your team and they will adjust things for you. 
Hang on in there and ask away. No question is daft and there is always somebody to answer it 

Best wishes 

Oh dear. Poor you. I lived on mainly custard and cream as well as Reddy Brek and cream plus very sloppy scrambled eggs made with (you’ve guessed it) cream when my throat was at its worst during RT.  This alongside Fortisips all to keep up my calories, even though I could taste nothing. I never had a RIG so can’t comment on that.  Keep at it. It’s tough but it’s effective. 

Hi GSP

welcome to the club that none of us want to find ourselves. Yes you’ve hit the 2 week mark when everything  ramps up.Make sure you are on top of painkillers also laxido or similar as opiates make you constipated just a reminder on that score. I had a n g tube fitted week 4 that had a pump so I could feed all day or nighttime . Keep hydrated and remember you can put your meds in via tube.  You should have been given swallow exercises do keep up with them as it does help after. Yes it’s tough but if I can do it anyone can I had 35 radiotherapy sessions and  2 big chemotherapy . As Dani says no question is too silly. 
My hubby used to help me by doing charts for meds and feeds anything to keep him involved as like he said he felt useless but to me was a god send. 
Hazel x

Thanks for your kind thoughts,I've chemotherapy/radiotherapy tomorrow so I'll mention about maybe if I should think about using a pump. 

Hi GSP

My treatment started 8.3.21 so I am not too far ahead of you, 6 weeks post treatment now. I had 30 RT sessions and 4 chemo as wasn’t well enough to manage the 5th. Luckily I didn’t need a feeding tube.

 I could eat porridge, Weetabix and Farleys rusks lol which get very repetitive after a while. I also just didn’t want to eat for quite a while and had to make myself. I had Fortisips but didn’t really like them too much. My medical team also prescribed chicken soup which seemed lovely at the time given the limited choice.

The good news is that although it seems like a long journey at the time and we all recover at different rates, it doesn’t last forever. 
I am 6 weeks post treatment now and I finally feel like I have turned a corner. I can eat many more things now and off the liquid supplements, I just have to drink water to help me swallow the food. 
I am now managing pain from 2 mouth ulcers with just paracetamol and even after being stuck on the sofa with fatigue since week 3, I can now potter about. I was even well enough to sit in a beer garden for a couple of hours on Bank Holiday Monday although I could only drink water lol.

Wishing you all the very best of luck and at some point you will be where I am now, although I still have a way to go

Michelle

Hi Shell 12 hearing from you and knowing there is a glimmer of light certainly is encouraging. Just had radiotherapy and unfortunately after chemotherapy yesterday feeling crap. Doctor is going to give me some different anti sickness drug so hopefully it helps. Here's hoping. 

GSP you have got this.

My oncologist gave me a super pill for sickness which I only had to take once a week an hour before chemo. The anti sickness meds I was on initially just did not work. Sadly I can’t remember what it was called but your medical team should know.

You are coming to the end of week 3 and almost half way there!!!

Wishing you all the best 

Michelle