I’m doing great according to the hospital & everyone who knows me BUT I feel shut away, fed up & just want this to be over with & get my life back.
I know I should have more patience. I know that this has saved my life. I know it’s a long road. I know all those things BUT !
I just feel like I’m on my own, battling everyday to eat, drink & be as “normal” as I can. For everyone else! My husband is very supportive but feels helpless. If I could sleep for the next 6 months and wake up to some kind of normal I would !
sorry just need a little help if anyone else has felt the same.
thanks
Samantha
Hi Samantha,
Please don't knock yourself for being human. I have just managed 1 chemo and 2 radio and had a major meltdown on the phone to a friend yesterday panicking that I cant do it!!! Champing at the bit already to get it over with!
The balance between being positive for everyone else but not at detriment to yourself is a very fine one. It is such a conditioned part of us I think.
I'm afraid I have no words of wisdom, we are all here for the honest no filters part so come and vent. You will get there and I know from your posts you have done really well, treat yourself as kindly as you are treating everyone else,
Julie xxxx
Hi Samantha unfortunately there’s no quick fix I could lie and say tomorrow all will be fine but I can’t. You were or are doing well with the eating. What’s the main problem now ?
you’ve got to remember your body’s been taken to the lowest point it’s ever been now it’s slowly slowly got to rebuild. At 6 weeks there’s a turning point by 12 weeks another one but you can’t rush if you do you can face hitting the wall. If it’s fatigue you’ve got that’s a common side effect it’s like a tidal wave all you can do is listen to your body.
plus you aren’t doing this for everyone else it’s for you honestly eating normal cannot be expected this early on. What i would do was eat my own thing but sit at the dining table with others snd go at my pace . As for drink I struggled even with tap water what are you hoping to drink ? Coffee came back around week 10 for me.
hugs
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I’m eating mixed bits. Drinking tea coffee water milk. I think it’s a low point for me that’s all. I think Covid lockdown and not having other people allowed for support hasn’t helped.
thanks for your help xx
Hi Sam
That's it. No one understands what you're going through unless they've been there but we have and we do!
Your friends/family will be wanting to support you in whatever way they can and it's so difficult for them knowing there's only so much they can do.
Take one day at a time. Accept that some days won't be great but know that slowly things really will improve.
Look after yourself.
Linda x
Hi Sam...It's two steps forward one step back all the time and that can be so demoralising.We don't realise just how much of a social thing eating is and to compound the problem, to all intents and purposes, we look normal and certainly not like archetypal cancer patients.
Have you something , a hobby like gardening or walking that takes you away from the kitchen and food?
I'm sure you have a copy of Dr Peter Harvey's excellent article but here it is again..... After the Treatment Finishes
Summer is round the corner and we all feel better with some sunshine and fresh air so hopefully that will lift your spirits.
My immediate recovery was February and I was pretty low and know how you feel.
There's no harm in asking your GP for some antidepressants for a couple of months either. Your serotonin levels will be low and all they do is sort that back to a more normal level and they are not addictive.
I know you know this and I know it's annoying hearing it from somebody else but you WILL get there. Promise.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Sam that’s why we’re here to rant rave snd ask questions our family’s try to understand but really they just want us better and back to how we were.
we take the pressure off each other yes good idea speak to g p its not uncommon for cancer patients to have mild anti depression
hugs Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I agree with Dani and Hazel. There’s no difference in popping a pill to rebalance your seratonin levels than there is in taking a pill to balance, for example, your blood pressure. I was given Citolpram 10mg daily by my gp and it made a big difference.
Whatever cancer throws your way, we’re right there with you.
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