Hello I am just starting my journey and any advice will be appreciated

Hi Kitty 

Thank you for your message, yes it sounds like we are both from the same town.

Your message and others on this community has been very positive and encouraging. Obviously it is what it is but I am up for the fight and getting out at the other end.

Thank you again Take care ( m’duck) 

Had my oncology meeting yesterday, mask next week, prob weds after to start chemoradiation, didn't ask at the time but any ideas why they start on a weds?!?! Seems so odd?? Also, they are doing my cistplatin in 2 doses not 6, is yours the same? 

I received my Cisplatin in 2 doses rather than 6, but that was 3 years ago when it was not standard at my hospital (Derriford in Devon). The nurses in the chemo unit had to double check it because they had never  administered such a big dose before. Needless to say, it was 3 times the usual weekly dose. These are big hitters so you will need those anti-sickness meds! Do expect to feel pretty awful for a few days!

I started on a Wednesday. Lots of MDTs seem to meet on a Wednesday too. 2 or 3 larger hits of cisplatin are pretty common in a lot of hospitals. 
Good  luck 

Hi Julie (I hope it s Julie?) 

I am on a slightly different timing than you, I had my mask fitted last Monday and they want to start my treatment (Chemotherapy & Radiotherapy ) this coming Wednesday, I have a meeting now on Tuesday to discuss the treatments. seems to be going through quickly, which I am obviously very pleased with.

Have you had a stomach rig fitted? 

I've had mine fitted 7 days now, it is still sore to move around, sit up and down etc but have been reassured it will settle down.

Take care 

I finished treatment just over 5 weeks ago and my treatment started on a Wednesday too.  For me it was because the head and neck clinic is on a Wednesday so I used to go down when I was having the chemo.  I was given the choice of having having the cisplatin on larger doses or smaller I think I was given 3 options but went for the lower weekly dose which worked for me as I was very poorly with the chemo....lots of sickness!  They cancelled the last 2 as I was too ill to have any more.  Everyone is different however and a lot of people fly through without any issue.

Good luck with your treatment - it will be over with before you know it!

Sue

Just to say I had RIG fitted and it was sore for 2 weeks it did settle but it took longer than they said (a few days I was told!).  I did need it part way through treatment and for a few weeks after, I am just over 5 weeks post treatment now and haven't used it for the last 10 days so I am waiting for a date to get mine out now.  Definitely  worth having as an insurance as you never know how you are going to be.  I was determined to keep eating and I did up to week 3/4 then it all went pear shaped for me as reacted badly to the chemo.

Good luck with your treatment I hope all goes well.

Take care

Sue

Hi Sue. Great to see you sounding so upbeat. 
keep it up and hope you get the stomach tube out soonest. 

Thanks Dani really turned a corner these last couple of weeks can't believe how different I feel, eating is going much better than I could have imagined.....eating pizza, curry, sandwiches, roast dinner, chips....to name a few things I thought I may never eat again!  I am still quite slow and I can't eat loads at once but managing to have all of my calories through food and not having to drink the Fortisps now. Lots of determination needed but worth all the effort. 

Sue x

Wow.  Brilliant.  Well done Sue.

Linda x