Surgery Got canceled at last minute - disappointing

How disappointing Richard. I know it’s scary, however I don’t think that eight weeks is an inordinate amount of time between diagnosis and surgery, as much as it may seem so to you at the moment.  I was diagnosed in mid August and had my op (tonsillectomy and neck dissection) in mid October so about 8-9 weeks. There were no delays and my team seemed quite relaxed about the time scale. As far as I was concerned I wanted it done ASAP, but I just had to trust my team. In the end it all turned out fine. All the best. 

This must be enormously frustrating for you. I had what was only minor surgery a few years ago and know how psyched-up to manage with it we get. Such an eleventh hour cancellation must have been a cruel blow.

Unfortunately in Covid-world too many things are disrupted.

I hope your treatment is swiftly rescheduled and please come back and report how it goes. Best of luck.

Richard. That’s horrid news but try not to worry too much. I diagnosed my own cancer at the beginning of August 2018 and I wasn’t under RT till December 12. Still here 

Hi Mark

Thanks for your reply. Its reassuring you had a similar wait and the team seemed OK with it. Very glad to hear it turned out fine.

Regards

Hi Cathy,

Thanks for your reply. Pretty sure I will get the surgery on Sunday or Monday. Thanks for the reply and yes I will update at some point after the surgery. from hospital if I can access sufficient tech or if not from when I get home.

Thanks for Reply Dani, which I found helpful. Also I re read your summary about your journey with cancer which I found very helpful

Regards

Richard

Hi Richard 

I am not surprised that the cancellation has caused you anxiety, especially for you to have got as far as you did on the day!!

 I was told 17.12 that I had cancer and on 24.12 I had a treatment plan put in place. My primary had not shown up on any scans etc so I needed a tonsillectomy and biopsies etc. I was told that I would be a priority case and this was just as we were hitting the 2nd peak of Covid.

My op was arranged for mid Jan which felt too long as I just needed action and to know something was being done. My op was cancelled due to Covid and rearranged for 29.1.21. It did go ahead then but it felt an awful long time from 17.12.

I had first found a neck lump in July and struggled to get through to a doctor in September having left things a few weeks. Finally I saw the ENT consultant in October but my cancer took many tests, scans and biopsies to detect.

 I was fragile mentally at that time but the consultant gave verbal assurance that the delays would not have any impact on my life expectancy so I have to trust that that is the case.

 I hope they go ahead as planned next time, I am sure they will.

 I got to have mine done in a private hospital and it was lovely. I had my own room and tv etc so that was my reward lol.

Keeping my fingers crossed for you

Hi Shell12 and thanks for your reply. Glad you have the operation behind you, as you say you need action to happen so I hope I will have that feeling next week after my op. Nice that you had good accommodation in hospital, I am taking a Michael Caine book which looks to be good fun, my daughters old Ipad and hopefully with some downloaded stuff to divert me if i can get it to work ! I suspect the phone and whattsaap will be my link to the world for the next week or 2.

I hope your treatment is going well

Richard

Everything is going ok so far except I couldn’t have my 5th dose of chemo this week as my white blood count was too low and next week is looking doubtful as today’s blood test has shown they haven’t risen.

My oncologist said that if I can only have 4 lots of chemo then that won’t make too much difference to the overall.

 I have been prescribed soup on prescription as the milk shake type Fortisips do nothing for me. The chicken is lovely so thought I would share that tip with you just in case.

 I will keep everything crossed that your op goes ahead next week as hoped. I think you are right, a good book and a charged phone/iPad is the way to go!!

I didn’t need a neck dissection so not sure how long they will keep you in afterwards but hope it’s not too long.

Let us know how you get on, you’ve got this!!

Hi Shell 12 I was due to have 3 x 10 hour chemo sessions my last one was cancelled due to my neck lump having gone we in con junction with oncologist decided against bit I had responded well not the previous sessions. It didn’t make any difference as it’s radiotherapy that does all the hard work chemo is adjunctive to the radio. 
good luck with the soups I couldn’t stand  them. I found the ensures ok. 
Just remember the first few weeks if recovery can be challenging

good luck 

Hazel