Head and Neck Cancer

FormerMember
FormerMember
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Hi all

My husband was diagnosed with Malignant Neoplasm of the Nasopharynx in Sept 2020 - in short, incurable Grade 4 cancer of the head and neck.  The tumour is actually behind his nasal passage and has very slightly spread to his lungs (but no issues at present).  He completed 5 days of radiotherapy in Oct 2020 as palliative care.  On 14/1 we were told that the radiotherapy could not buy him extra time (less than 12 months), but had stalled the aggressive growth of the tumour for a short while.

My husband is still eating/drinking and is mobile to an extent.

The one issue that plagues him is blurred vision in his right eye and constant "dizziness" hence he has to wear an eye patch during the day and uses a walking stick.  He's also lost a lot of wait after suffering considerable sickness after radiotherapy.  If it wasn't for the dizziness, he would be walking normally and able to go out for exercise.

My question is whether anyone else has suffered this awful blurred vision/dizziness and if so, were you able to try anything to relieve it - whether conventional or alternative medicine?

Whilst we accept this is the pressure of the tumour resting on the eye nerves etc, we are just trying to establish whether anyone has ever tried anything which has helped relieve the dizzy spells.  My husband has also lost hearing in his right ear and is awaiting hearing aids.  The Ear specialist did say that whilst there will be "liquid" sitting/building up inside the inner ear canal, as my husband suffered quite badly with sickness etc after radiotherapy, the procedure to ease some of the liquid etc would probably been too invasive for my husband to bear.

Although his life expectancy is likely to be 12 months or less, if he could still get out for a walk when the weather/covid allows  - this would make a huge difference to him.

Just interested to hear feedback/suggestions - many thanks.

  • Hello Lozzer. Can I just welcome you to our community. So sorry to hear of your husband’s advanced diagnosis. It sounds like you both have much to contend with but are having a good go at making the best of things. 

    Sadly there are few people on here with this type of cancer but I hope somebody spots it and can offer you something. 
    All the best Dani 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Lozzer

    welcome to the community sorry I can’t be of any assistance as my cancer was tonsil cancer. But with you by hubbys side I m sure you will help him as much as you can. 
    I hope you can continue to enjoy the little pleasures in life.
    Hugs Hazel x 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Lozzer

    I am so sorry to hear about your husband’s diagnosis and I applaud both of you for trying to improve quality of life as every moment is so special.

    I expect you have already explored this avenue but just thought I would put it out there anyway.

    After my surgery which was a maxillectomy (removal of part of my palate including my left upper gum) I had a buildup of fluid in my left ear and became deaf in that ear. However I did not have any dizziness. My surgeon put in a stent which was just a quick day surgery and only took him a few minutes. The result was excellent as it drained the fluid and now I can hear perfectly well.

    Wishing you and your husband all the best.

    Lyn

    Sophie66

  • My apologies it was a grommet and not a stent.

    Lyn

    Sophie66

  • Hi Lozzer

    It might be worth seeking out a physiotherapist who is trained as a vestibular rehabilitation therapist. 

    https://vestibular.org/article/diagnosis-treatment/treatments/vestibular-rehabilitation-therapy-vrt/#sthash.7sS5w6nL.dpuf

    All the best

    Linda x