Hi there

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Hi thanks to Panch for introducing me to this group I’ve been lurking for a few weeks but thought I’d introduce myself.

I’ve been on the rollercoaster of diagnosis, surgery and treatment. Having found a small tumour (HPV SCC) on the back of my tongue that was removed I have had 25 treatments of radiotherapy and 2 of chemo.  I have 10 more blasts of radiotherapy left.

My enlarged lymph node that had metastatic fluid in (and was the original indicator of cancer) is being treated by radiotherapy (rather than being removed at this point). 

I am having my treatment in Canterbury. It’s a trek but it’s become my routine now and my Oncologist has done an amazing job of keeping all the treatment going to plan in such tough times.

I had a stomach tube fitted but not needed it as yet.  Am really starting to struggle with eating now though.

At least I feel I’m on the final stretch.

I’m sorry that you find yourself here but it’s been a great help and comfort reading about your experiences on here.

SLJ

  • Hi Sasha. And welcome to the group. I’m a few weeks ahead of you - two weeks post chemoradiotherapy - and beginning to turn the corner.
    I hope you’re coping well with your treatment, it sounds as though you are, and that you continue to find this group useful.  It can be reassuring and quite scary in equal measure, but it’s good to check out your own experiences with those of others going through something similar.  Keep well and keep at it. It’ll be worth it! 

  • Hi Sacha

    With  looking after you, you can’t go wrong. Welcome to our community. 
    Dint dilly dally using that tube. The more calories and protein you get inside you the faster you will heal. I had an NG tube in for 8 weeks. Never lost any swallow function because I stuck to my exercises 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Sasha 

    welcome to our small knit community. Sorry thst you find yourself here. I am now 30 month post radiotherapy for tonsil cancer with several affected lymph nodes I had 35 radiotherapy sessions and 2 chemotherapy cisplatin. As Dani says don’t delay in using your feeding tube I had no tube in front week 3 for 6 weeks and biy did I need it. I too religiously did my swallow exercise s and maintained swallow . Am now living my life both here in U.K. and Spain when covid allows.To relieve lockdown boredom have started cycling virtually Land End to John o Grots on my bike indoor on rollers. Proof that as tough as treatment is life does go on. 
    if you’ve not popped on to our blogs both Dani snd I have links on our signiture s

    ask any questions Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Markel

    How are you doing are you beginning to feel a little better yet? I hope so.

  • Beesuit I will use my tube, I promise.

  • Radioactive Rez - hi and well done on doing that cycle ride - what a great way to keep fit in these strange times.

  • Well I'm still learning the lay out of this chat room, but thanks for the welcomes.  

  • Hi Sasha. I don’t want to tempt fate but yes, I think I might be turning a corner thanks. I didn’t need any Oramorph yesterday and I managed some tinned oily mackerel mashed in with my usual scrambled eggs for supper last night and it went down a treat. Good luck with Week 6. You’re well over half way now Thumbsup

  • yay - fingers crossed for you. 

  • My achievement of the day is pasta with cheese and cream - through a food processer/choose first obviously Blush