Hi all,
I am very close to 3 months post treatment (17th Oct). Base of Tongue and Lymph node HPV +. I will be having my scan next Friday.
Overall I am really pleased with the progress I’ve made but wondering if others have experienced anything similar.
1 Aching Tongue. On the whole I don’t get any pain but sometimes if I press my tongue in roof of mouth it still aches.
2 Swallowing through night. There is a substantial difference in my swallowing ability through the night and first thing in morning. Through the day I have no problems at all and it seems to rectify once I’ve had a morning coffee. I have quite a lot of Lymphodema in neck so not sure if this is relevant.
3 Fluctuating dry mouth. Some days I have no issues at all and other days it is quite bad. It’s usually resolved with some gum but frustrating that it does fluctuate.
4 Urinating. Since my treatment finished and probably more so since I had rig removed I seem to need to get up 3 or 3 times in the night for the toilet. Also in the day I find I need to go quite quickly without much warning.
so just wondering about others experiences and if there is chance these things can still improve further.
Many Thanks
Hi
1. is perfectly normal so put it away. This will change through the years. I still have a spot where my tongue joins my throat at the retropharyngeal triangle which has fibroses and sometimes really bothers me. I also get burning tongue some days.
2. I has just this and put t down to lymphoedma inside. I put this to my oncologist and he agreed. Swallow exercises and it eventually goes
3. Yes spot on and again normal
4. I can't help you with....I'm on HRT to stop my bladder irritation but still need to pee at night. That won't be any help to you though....sorry
