Radiotherapy experiences

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Hi... well ive finally signed the consent form for radiotherapy on the residual tumour that has been found since my op in may in which I was told complete removal... with many many nasty scars and lattimus dorsi removal to be used as a flap for the area where the tumours were removed... the consultant talked me through all the side effects

Its going to be done every day over 3 weeks,and he said the side effects quite often only appear after the end of treatment

Looking to hear about others experiences please... xxx 

  • H  

    The reason they are telling you this 

    Its going to be done every day over 3 weeks,and he said the side effects quite often only appear after the end of treatment

    Is because it takes three weeks of RT before you notice much. I found it impossible to swallow by the end of week three so I had an NG placed. Maybe the RT won't get as far as your throat so that shouldn't be a problem? By the end of week three all you could tell from the outside was a slight reddening of the skin on my neck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thankyou... my tumours were c5-c7 at the side of my neck...its good to know all the possible side effects but also scary...

    How are you now?

  • Hi. I’m ok. Just a dry mouth especially at night. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I already have a dry mouth at night anyway...thats good though thats your only thing especially after what you must have gone through..

  • Water under the bridge. Most of us make a pretty good recovery It takes time but we get there. Yours is a more difficult cancer and your journey is tougher than mine but keep the faith. We are all rooting for you.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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