Recovery

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Hi everyone, I've just posted on the 'Hello' thread but was wondering (I know jumping the gun a bit but...) how long/hard you all found your recovery post treatment? Everyone has told my what to expect during, but no one has mentioned after. 

How long before you were able to eat normally?

How long before you were able to return to work?

How long before you were off pain meds etc?

Also any other issues you faced.

I appreciate everyone is different but I just want to get an idea of what to expect so I can be ready/plan for it. I'd rather be pre-armed!

Thank you all 

  • Six months

    Retired

    Started taper at 12 weeks

    Other issues: steps back as well as forwards and having unrealistic expectations. Finding the right regime for sleeping with a dry mouth ( xylimelts and water to sip which I could do in my sleep. Radiation fatigue for a year intermittently hitting me like a sledgehammer out of nowhere. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you, good to know, and hope all is good with you now or as good as can be.

  • Good morning Flowerchild, my husband finished his treatment NewYears Eve 2024,from T4N3M0 bottom of tongue throat cancer. Swallowing solids was a problem for another 12wks or so after ,he mostly got by on soft food,gradually eating solids got better. He was healthy enough to go back to work by May. His line of work involves a lot of driving and fatigue was still there on a daily base till than. Once he finished treatment he was coping well with just paracetamol. Fasten forward 21mths, dry mouth and lack of saliva is part of daily life. Caughing and sneezing while eating seems part of the "new normal" too now. All the best for your journey fellow wife Mel x

  • Thank you Mel for the info. Good to hear he is doing well now.

    Mandy