Side efects

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11,weeks post treatment and was doing really well . However throat and ears taken a turn for worse . Is this normal in recovery ? 

Regards

Moi

T4N1M0

  • Hi  

    How worse? 
    Recovery takes a long time and most of us aren’t happy with progress for six months or so. Steps backwards are really normal. 
    Have you done anything different from your normal routine? Eaten something, been too active? That sort of thing. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi. 

    Similar thing happened to me. I was much better for 3 weeks and thought it will stay that way, so arranged to go back to work. 

    Went back to work and symptoms came back. 

    Then few weeks later passed, and now back again. 

    Treatment finished in June.

    All the best.

    Izzy. 

  • Thanks for your response,  

    Helps to know that this is usual . Like you I was fine , eating drinking , no pain . Then boom .

    Moi

    Moi

  • Been too active? I started badminton again a couple of weeks ago. Do you think it's too soon?

  • Are you doing much mouth breathing and laughing with your partner ?

    Honestly I don't know but recovery is up and down.

    Even over seven ears down the line with the season and weather changing I can feel the first of my sore throats creeping up

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Thanks for response , 

    I was just worried as not as far along as you in terms of recovery . Having pain in  neck and collar bone as well as sore throat and ears . Haven't done anything different in my routine . Had a recent check up with camera and doctor said all clear on camera . Have MRI on 3rd October , scary times

    Regards

    Moi

  • All those can still be put down to effects of RT and you are still so early in your recovery

    I know it's hard. Hopefully your MRI will be clear 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hello Moi,I  had a port in for chemo which caused pain for me in my neck and collar bone so I had them remove the port.

  • Hi moi. I too had pain around collar bone ,ears ,back of neck, jaw . I think it was inflammation,  its gone now, just get the odd twinge in ears for a second, then its gone. 

    Tracy 

  • Hi , 

    Thanks for this,  I'm not in  a very good place at moment . Every twitch i think its not worked . Gets worse as scan gets closer . Nurse tells me concentrate on clear camera I had end of August. I'm just  afraid I guess x

    Moi