Hi I’m new here I was diagnosed with cancer of the Parotid gland in March 25. I subsequently had major surgery in May 25 to remove the tumour and the Parotid gland. I also had to have a facial nerve removed and a cable graft from my right leg to replace the nerve that had to be taken out. I also had 62 lymph nodes removed from my neck. I then had 33 fractions of radiotherapy at The Christie and then my first PET scan in Dec 25 which miraculously showed all clear. I had another PET scan in March 26 but this unfortunately showed 4 sub centimetre nodes on my lungs. A further PET scan in June 26 has now showed 8 nodes on my lungs all still sub centimetre and 3 lymph nodes 1 behind my collarbone and 2 on my lungs. This is now metastatic cancer from the original site and I have been told to expect a life expectancy of between 2-4 years. I am fit and well still going to the gym , eat healthy and work part time. I am 59 years old. I think I am going to be put on Androgen Receptor Therapy to start with which is basically a hormone blocker testosterone to be exact.
Is there anybody else out there who is going through a similar experience?
