Stopped taking all meds

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Hi all,

I am now 6 weeks post treatment and things were going great. I have been able to eat crisps, pizza, chocolate etc. 

Last Wednesday I took my son to watch Newcastle as I was feeling well enough. After that I stopped taking all my meds, main ones being Pregablin, slow release morphine, and Oramorph. I haven’t been in any pain but by god have I felt ill. Absolutely no energy and I’ve hardly eaten or drank since. I don’t want to go back on them to fix it but is there anything I can ask for tomorrow when I’m at hospital. 

Thanks

  • Withdrawal symptoms but I guess you know that. You have two alternatives. The first is to go back on the meds and reduce slowly. The other is to tough it out “cold turkey” feeling absolutely awful for a week or so. 
    I would be interested in what the hospital might suggest. 

    I tried exactly that though I was on just depo and fast acting morphine. I knew what would happen but I lasted a day! I took a month to gradually reduce my morphine 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks Dani, I stopped last Wednesday and really don’t want to go back on them. I was also wondering how long it might last but I guess that varies person to person. How did you feel after you finayce off them?

  • Perfectly ok. 
    I stopped the long acting stuff first straight off. Then reduced the oramorph by about a fifth every couple of days so I think it actually took me a couple of weeks rather than a month. I was on paracetamol for a good bit longer. 
    Those withdrawal shakes are something else. 
    Why don’t you try just a small dose of oramorph. You’ll be amazed how quickly you’ll feel better. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • It’s the fatigue and lack of motivation I’m struggling with. This is worse than I was at any point during the treatment

  • Yep! Rubbish! 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • May I jump in and ask a question? 

    I'm at the stage of cutting down;Pregabalin and paracetamol.  Reducing the pregabalin seems straightforward, how did you cut down on the paracetamol, was it less times a day or less in each dose ,or does it matter . Does even paracetamol have withdrawal symptoms (after 15 months post ops) 

  • Paracetamol is ok. Just stop

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I went back on Oramorph today as I couldn’t handle it any longer and what a difference. Feel human again

  • Good evening Jako, once my husband stopped taking his opioids and stuck with paracetamol, his mood changed,has more appetite and felt much better with himself. But this is only my hubbies experience. Hope you feel better soon. Fellow wife Mel.

  • Thanks. I just stopped all my meds at once and had really bad withdrawal. Hopefully I can wean off the oramorph now as I don’t have any pain