Hi all
Seven weeks after the end of radiotherapy (parotid gland tumour), I am struggling with mouth irritation and dryness, which is particularly annoying during the night. I sip a bit of cold water whenever I wake up, occasionally I apply a gel (Biotene) or spray, I rinse with bicarbonate, or I brush my teeth to remove the slime. In the morning I wake up with a very sticky and dry mouth, and a throat that feels blocked.
Any suggestions on how I could manage this better would be very welcome. Would you recommend setting an alarm to hydrate at regular intervals? Should I brush and clear the slime every time I wake up? Is there something else I can do?
I know that xerostomia can last for months and years. It's hard to imagine facing this continuously in the long term.
best to all
Roberto
Hi Roberto, welcome to the Community, unfortunately it is an issue with any head and neck issues you can regularly mouthwash I do 4 times a day along with brushing teeth once,there's some special mouthwash you can get either speak with your hospital team or your GP it would be on prescription , I'm prescribed a simple mouthwash nothing special but it really helps, chewing sugar free gum sometimes helps as well, great information regarding dry mouth is available on the Swallows website and they also supply free samples to try
https://theswallows.org.uk/contact-us/
Hope things improve I'm sure they will
Take care , Tony
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Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022
Hello there,unfortunately this seems a common side effect after treatment. My husband is still having a dry mouth 19mths post treatment. Apart from constantly having a bottle water close by,he uses Xylimelt tablets for during the night, you put one just under the gum and let it desolve. He tried different mouthwashes or gels,but these don't seem to do much for him. I guess this is something everyone seems to have work out for themselves. Good luck Fellow wife Mel.
Hi Roberto. Sounds as though you are doing everything right in relation to managing the dry mouth issue. I still have dry mouth 7 years after radiotherapy but I have had 2 lots over time so it is a bit worse than most. Everyone is different and some have their situation resolve better than others. It is a wait and see. I still wake up several times during the night with a dry mouth and then take a sip of water and a spray of Biotene moisturising spray. This works quite well and I can then get off to sleep again. Things definitely improve but to what extent is in the 'who knows' department. Things should improve for you so just hang in there and keep doing what you are doing.
Best wishes
Lyn
Sophie66
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