8 weeks after radiotherapy finished some strange symptoms

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Hi all. 

I finished radiotherapy for head and neck cancer about 8 weeks ago. 

Had loads of side effects, but lately felt I am almost back to normal so decided to go back to work. 

Starting on Wednesday and it is staged return. 

I the last 2 weeks the skin that was treated with radio swelled. Literally every millimeter of it, nowhere else. 

I am doing some gentle exercises found in cancer research,in case it's lymphoedema, but only just started them.

Another strange thing is that my scalp started to tingle as well.

I don't have any other problems, I feel well. I helped my husband with living room renovation and renewed our living room door by myself. 

I am also reducing oxycodone further, and had tingling in other parts of the body when reduced dose few weeks ago. Could that be it? 

I will speak to my oncologist but the appointment is in 2 weeks time.

Maybe some other of you had similar problems and could calm my nerves until the visit?

I would appreciate it.

All the best

Izzy. 

  • Hi Izzy, you are still very early in recovery, and your body has still got a lot of healing to do, which can take a good while. However, you seem to be doing remarkably well, try not to push yourself, give your body time to heal.

    Ray

  • Hi Izzy,

    It's amazing that you are feeling so well. I am 10 weeks post treatment and thinking of returning to work end of September but I am still feeling too tired and feel I might need more time. I am also still not able to eat properly as the food tastes bad so I am drinking Ensures.

    Interesting what you are saying about swelling of your skin. I've had a strange sensation on my neck since the RT, as if the skin is thicker than before and a bit numb. I still have a bit of burning feeling there sometimes although the skin looks normal. I wonder if this is just the RT side effect. I also have tingling in my lower legs/feet but i think it's neuropathy. I don't think yours is related to that.

  • Thanks Rose. 

    I also think tingling is side effect of radiotherapy.

    In my case might be also lowering opioids, first time I have tried to do it same tingling as on my scalp appeared on my legs, so very similar just different area. 

    It is a bit of my own fault, as I am trying to not to take breakthrough doses of oxycodone, as soon as I take just 2.5 ml the tingling stops.

    I think if it would be one of those two things at once I would cope better.

    Tingling on scalp and neck swollen all around at once and painful is a bit much.

    I think I would like to stay off work for a bit longer, but financially we are a bit stretched and my work said they will help me settle down slowly and will give me easy tasks. So fingers crossed. 

    All the best x

  • Hi Izzy,

    It does look that the tingling is related to oxycodone. I hope there will be someone here with a similar experience regarding this and the swelling.

    I'm sure you will be Ok at work as they are so supportive. My work is the same and I feel that it might be helpful to start having a different daily routine. 

    Wishing you all the best too x