Opioid withdrawal help and suggestions please.

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Hi all. 

I am on a mend from external beam radiotherapy, finished 6.5 weeks ago. 

I don't need my strong painkillers anymore, wanted to take paracetamol only when needed. Asked GP for lowering of the dose.

I was on 30mg twice a day now on 10mg twice a day.

Started to feel a bit funny but didn't think it was anything to do with the dose reduction.

Anyway on Friday I thought I don't need oxycodone slow release 10mg anymore so stopped the tablets all together, only took paracetamol.

And OMG! 

Through out the day, I felt horrible. Ached in all muscles, sweating but not hot, skin very sensitive, all came back as withdrawal symptoms. At 2 am I had to take oxycodone liquid, I was so poorly.

Oxycodone liquid is fast release, so can be taken as and when. 

So this morning I decided to go back on the 10mg slow release until my visit with GP. 

I have a visit with my GP about further reduction on Wednesday.

Anyone here knows what can I ask them so the tempering will go smooth? Is there any medicine that can be given whilst I am going down in dose and will stop me from having that withdrawal symptoms?

I know GP should be able to help but it's not my usual doctor, it's a locum and I know sometimes they are not the best in helping someone they will not see again (from my experience - I know there's plenty of lovely locum doctors as well).

Anything I can suggest?

Thanks all smart people! 

Izzy. 

  • What I did was to stop my slow release and just take the oramorph in the day. Usual dose for a week. Half that for another then another half of that for a week so three weeks to taper. I found that as long as I took a dose of oramorph first and last thing in the day I was fine 

    You made me laugh, sorry

    i did exactly the same thing but what made my efforts incredibly stupid was that I knew I would get withdrawal. I thought I could ride it. I could …… for half a day JoyJoy

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Been there and have the T-shirt!!  I feel for you.  Despite tapering off in an agreed plan with my GP I ended up in serious difficulty.  During the day I was OK, but at night...  It still sends shivers up and down my spine to think about it.  Unfortunately this anxiety corresponded to my PET scan so I had no real idea what was causing the issue.

    Anyway at 3am a few days after the tapering off had concluded I could stand it no more so made a GP appointment for that morning.  I also decided to take a miniscule amount of Oxycodone and withing seconds everything was better.  I had my answer.  That morning I spoke to my GP and we agreed to a very small dose of liquid Oxycodone each night which I tapered off at the rate of 1mg per week for 5 weeks.  That regime worked for me.

    I now have the upmost sympathy for anyone with an addiction to anything.  It is a terrible place to be.  Hopefully this may help and you get off the drugs with minimal pain.

    For those that are reading this please don't be scared to take the opioids prescribed to you.  Pain relief is critical in our treatment and effective recovery.  Only a very few of us have the accidental addiction and, as you have seen, it can me managed, especially if you self manage in partnership with your GP and don't try "cold turkey".

    Peter
    See my profile for more details of my convoluted journey
  • For those that are reading this please don't be scared to take the opioids prescribed to you.  Pain relief is critical in our treatment and effective recovery.  Only a very few of us have the accidental addiction and, as you have seen, it can me managed, especially if you self manage in partnership with your GP and don't try "cold turkey

    Couldn’t agree more. I hear of so many people frightened to take opioids in case they get addicted. I’m sure most clinicians are on top of this and explain that’s not what happens. Addiction is a completely different animal. We take them for pain relief and what happens is our bodies become tolerant which is why we get withdrawal. We don’t take analgesia to give us a high which is where the psychological aspect of addiction comes in. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi I did a slow withdrawal over many weeks. I was on oramoroh and 30 mg co cocodomol I every 3 days reduced the oramoroh then the co codomol from 30 mg to 15 then 8 eventually  replacing ti just paracetamol.   Hope this helps. I fud a spreadsheet to keto track if it all

    hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I was the same, I said to my hubby: Greg, I can do this! I will do this! And I didn't!!! Rofl 

  • Tapering off took about a month... not easy but no other choice... A bit of itching and got irritable....

    Michael

  • I too struggled with withdrawal symptoms.. doc gave me a short course of diazepam, but that didn;t even touch me, so ended up on a short course of temazepam, that eventually brought me down back down to earth.. definitely not a pleasant ride.. hope you find some relief.. 

    Loz (63)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..