I’m having my mask fitting on Monday and I’m extremely anxious. I’m claustrophobic and the thought of having this placed over my face and laying there whilst it sets and being clipped down terrifies me.
I think the main fear is that I won’t be able to open my eyes underneath the mask. I asked the HNC nurse if they would be able to cut holes around my eyes but she said no! I do understand that cutting out pieces of the mask can reduce its integrity which would be a problem for accuracy.
Any of you lovely people out there felt the same or any tips of how to cope?
First. You should be able to get those eyeholes cut so keep pushing. The integrity isn’t really an issue once you are clipped down you can’t move whatever holes are cut You are fastened down past your shoulders
The experience is nit really a bad one but understandably stressful if you’re claustrophobic. The fitting and planning will be the longest time you are under that mask. Treatment should take ten minutes or so apart from the odd extra minutes when the radiographers add an extra scan.
Practice lying in bed with a towel over your face. Set an alarm for fifteen minutes. Play some music or take yourself for a favourite walk … some sort of distraction
For the fitting the mask is warm and wet so you can try popping a wet flannel over your face while you are in the bath.
When you have treatment you can usually take yourself own music to play. I never did. I was far too busy watching the machine pass round me with the treatment beam changing shape as it moved. Whether you watch the equipment or somewhere else being able to see is much better than not.
Be assured the radiographers can see you and can stop the machine to be at your side in seconds if you feel completely overwhelmed.
If you can get through the fitting you can get through the treatment easily.
You can always ask for a sedative from your GP too.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I asked the HNC nurse if they would be able to cut holes around my eyes but she said no!
Don’t believe her. I asked the radiologist after the mask and planning were done and they did.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
My mask came pre formed with eye and mouth holes in it. It just needed shaping to my head. I was lucky in-so-much that i was in no way worried about wearing the mask and strangely enough I found the mouth cut out really useful at making sure I was positioned in the mask correctly.
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