Hi all any experiences post treatment new- husband finished treatment in October . Refused tube and is only nourishing via protein shakes 4000-5000 calories daily. He looks great, sore still not able to swallow food still.
Great first PET scan, then two weeks ago stayed with excruciating pain that goes to his ear. Anyone experience this? Consultant has said it’s likely nerve related. It comes and goes but obviously very frustrating when we thought he might try food soon. And overall disconcerting to go backwards:(
Hello wifeinbattle, well done for your hubby to have come this far,with only 4mths post treatment,it's still early. My hubby is now 15ish mths post treatment also he's doing well, it took him about 5mths to swallow food,also we started with soft things. As to earaches, the treatment did cause some damage to both of his ears and it effects his hearing on both ears, that he opted for a hearing aid, however, I can't remember him being in pain so, I would suggest to bring this up to investigate. This could possibly one of the side effects due to treatment,at least that what we got told,when the subject 'side effects post treatment' came up. We find that our recovery is still a one step forward and two steps backwards kind of thing. Hang in there. Hug. Fellow wife Mel x
Fibrosis related pain?
Side effects of radiotherapy can appear months or years after treatment finishes, they can last for a few days or weeks then disappear, it's something we have to live with, your oncology team will be aware of most...I was not given much information concerning the latent side effects of CRT...I suspect most patients were not.... learn as we go?
Michael
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