5 down 25 to go

Lotty said:

How was everyone else?

Hi Tracy 

Huge swelling of submandibulars after one session. Looked like a hamster. Went down in a couple of days. 
Then nothing for two weeks save a little neck reddening and a scratchy throat at the end of the two weeks. 
Gradually the irritation increased till at the end of week three ( on a Friday….. isn’t it always! ) it all came crashing down and I couldn’t swallow anything without awful pain so I stopped swallowing. N G tube plus a bag of saline on the Monday after RT. Took a few days to work out the analgesia but oromorph made all the difference for a week. It had to be topped up with long lasting morphine twice a day which was a game changer. Kept background pain away. Plodded in and all was fine. Tube out 8 weeks after treatment. 
BUT we are all different and react in different ways. One of our members here posted yesterday that they had finished 6 weeks if CRT and needed just the occasional paracetamol. 

Thanks Dani 

Yes I saw that and thought wow ,they were lucky in that respect. I'm taking occasional paracetamol.  Saving the hard stuff ,if and when it kicks in good style lol. Yes my submandibular is swollen but was before treatment,  just feel like I've swollen glands and a fat to tongue. 

Had 12 hours sleep last night though so maybe that has something to do with the fat  tongue , hubby said I now snore really loud. Sounds like a deep rumble like an elephant , charming , good job i love him

Tracy

Week 3 was the start of the bigger issues for me, things became steadily harder to cope with, though it's different for everyone, some do get off relatively lightly, we just have to roll with the punches...keep posting...loads of support and helpful info available from posters who have been through or are currently going through the treatment.

Lotty said:

hubby said I now snore really loud.

You're lucky it’s you not him. 
I took myself off to spare room once I was on pump feeds. It saved me worrying about disturbing husband. 

Dani, funny enough, months before his diagnosis,my hubby snored like a steam engine,I remember it became increasingly louder with time, but since he finished treatment, he sleeps alot quieter, coincidence? Could there be a link? Mel x

MRSMM said:

Could there be a link?

It’s what alerted me to having a look in my throat. I was waking myself up snoring for a week prior. I have always snored but not that badly. 

For us it was the lump on his neck, that we thought something wasn't right,but other than that we had no clue, which now, mentioning the snoring,makes me wonder how long he was walking around with this ,as someone said,sly desease.

Mel i think there is , as I never snored and Alan was forever waking me saying I was giving him a headache it was so bad. That was at least a year before diagnosis.  

Tracy, I had to go downstairs,if I wanted a good night sleep,having to get up 4am ish,for work. But at times I might have slept in a tent outside,it was that bad. And in 30+ years I have never heard him snoring that loud. Come to think of it, it could have easily been a year. Wonder if there are more out here who think the same, up to now I thought it was just in my head.