Oncologist appointment

Lotty said:

they found a 7mm blip as he called it in my chest

Is this on PET or CT?

I had two lung nodules on CT. One was sub pleural ( a favourite place for lung cancer) so I was re scanned three months later.

Nothing had changed so there was no further action. Lung  nodules are common in older folk and they are usually benign and due to previous infection

Hello Lotty, so sorry about your diagnosis,as a fellow wife I can feel for you. My husband found himself in a similar situation back in September 24. He is now 14ish mths post treatment, after 30rounds of RT and 2 rounds of Cisplatin. He got treated at the Clatterbridge Liverpool. We couldn't fault them at all. All the staff were so helpful and professional. Living in the Warrington area, we had hospital transport all through the treatment. All our appointments were around 2pm,so we got picked up from home about an hour before.Some days we had to pick someone up on the way,but most of the time it was just us. Car usually sent was private transport. The downside was when it came to be taken home afterwards, the waiting time were long at times,sometimes we didn't get home till 6pm. Long days. Your oncologist is right in saying that you probably be tired at some point into treatment, my husband started to feel very fatigued about two weeks into treatment and slept all the way home. Also he is doing well considering,the road to recovery was cruel. But I couldn't think about the alternative.  On this note I wish you all the best for your journey. Mel x

Hi Mel thank you so much for your reply. That's great to hear about your husband, great new he's feeling a lot better.  I suppose it will depend upon what time my treatment is.

May need to stock up on a few books 

Many thanks 

Tracy x

Hi ,

It was on the initial ct when they were first testing me. 

Oh good that's  settled my mind a bit . Yes he mentioned a scan at 3 months to check it.  

Thanks for your help xx

Hi Tracy, have you been given a treatment plan yet? We had a complete list of all our appointments,from speech therapist,nutritionist and blood tests,Keith had two rounds of CT,with each being on the same day as RT,those days were extremely long. Being at the Clatterbridge Center, you will probably learn, that every department involved in your treatment is in the same building,can't remember how many times we have been going up and down in that lift. Lol.The area downstairs for the RT has usually got the TV on,but bringing books or crossword puzzles is probably a good idea. Will you have company to go with you? 

Hi ,Not yet I've just seen the oncologist today, who said that I will get calls soon with the dates. I guess it will be given when I attend first pre treatment  appointment. I've just sent consent email back so I guess  he needed that first.

I wasn't planning on taking anyone with me. Maybe one day a week when my hubby is off he will stay with me , but I'm not that bothered  sitting alone. They can't really do anything can they to be honest. Or do you think I should. Many of my customers who i ve kniwn for years,( im a hairdresser) have said if you want me to go with you  I will.  But I don't know if they're just being polite. 

Tracy x 

Tracy I can speak only for our situation, but my hubby was more comfortable with me being there,was more for support ,coming out of his treatment, especially when it got to the end of the treatment. He got very fragile towards the end,the treatment took alot out of him. But then I was fortunate enough to have an understanding boss and flexible contract that I was able accompany him. As I said, some days we had to go up and down in that lift to get to different levels for appointments. Just couldn't watch him doing this by himself.

Into the third week you will be getting mighty uncomfortable and having somebody with you will likely be pretty useful if not necessary. 
My husband came with me to all my sessions and drove me there too. In the last two weeks i used to sleep in the car on the way home. 

Lotty said:

Many of my customers who i ve kniwn for years,( im a hairdresser) have said if you want me to go with you  I will.  But I don't know if they're just being polite. 

We have been talking elsewhere on how our friends not only drift away but abandon us because they can’t deal with cancer so they disappear. I’m not sure that’s the whole story. I feel we need to help them through it as well as ourselves. Of course we have to pick the ones we can trust. 
if you have it in you take up offers especially in the beginning when you aren’t feeling too bad. Some of your customers may well surprise you. 

Oh ,flippin heck didn't think of that

I know i feel like they say ,just call if you need me ,but  deep down they won't expect me to