“Something” found on post treatment PET scan

Hi  Firstly  well done in getting the all clear on pet ct scan for your tonsil cancer

Concentrate on that and continue your recovery.

. Try not to worry l someone who had treatment same time as me his pet ct scan  also showed an anomaly in his rectum. His oncologist also said  not to worry he didn’t think it was any thing sinister but inflammation shows up on pet spct scans. Like he said it woukd be remiss if the hospital to ignore it.
. He waited a few weeks for the appointment and it was a polyp that was inflamed so a quick op sorted him. Easy for me to say don’t worry but thought you would appreciate a response. 

hugs Hazel 

Ah Hazel, Thank you so much for taking the time to reply, it’s incredibly reassuring to hear that tile, and I shall hang onto that and try to celebrate my recovery.

It’s a funny old thing isn’t it when you get the all clear? I’ve never considered recurrence, but when I was told today that I would be checked every 4 to 6 weeks for the first year, I immediately started to think about the fact that it might come back.

I’m sure that with time though, I will settle into believing that I’m fine! Another question for you, I know that you had auricular acupuncture to help your saliva (I can’t tell you how many times I have dipped in and out of your blog, it’s been a lifesaver!). I just wondered how long after treatment you started the Acupuncture? I’m thinking of having it, but not sure if I should leave it for a certain amount of time before doing so?

Thank you for all your support, and your replies to my posts, and also for your blog, it’s inspired me to write my own, which I hope will help people as well. Hugs xx

“Tale” not “tile”

Hi Bridget 

acupuncture I was around 6 months but that was only because I couldn’t find an acupuncturist. I would say sooner you try it the better. 
im lucky i never gave reoccurrence a thought My attitude was ok ive done the hard stuff now get on with living. I had all my check ups again breezed into them. Ok i had a few follow ups once dentist didn’t like something she saw but i knew i had eaten a ryvita  and it cut my gum so was infected. But like the dentist said she woukdnt be doing her job if she didnt get me seen. The other one was a cyst on my vocal cord. Oops I shouted at grandson while on holiday bad nana so I overstretched my voice. Ent consultant agreed and  far as I know 4 years later it’s still ther doesn’t cause me any issues. 
Appointments will get easier for you and they will get further apart as times goes on stick with us in here it may help you to help others if that makes sense. Head and neck cancers are a small part of the cancer world that’s why I and many integers stick around. 

thank yiu for reading blog glad it’s helped. It’s ready for an update when I’ve something to say. Great re blog I’ll give it a read. Later. 

hugs Hazel 

now celebrate your results. I did with a cup of herbal tea from memory. . 

Oh yes I recall about your gum! (I had a lesion on my lip a few weeks ago, the hospital insisted on looking into it but like you, I knew it wasn’t anything sinister). I will take your advice, although I’m not a fan of herbal tea, so I’ll go for a hot chocolate instead!!! X

I actually started the Acupuncture a few weeks ago, but thought maybe I was doing it too soon as it doesn’t seem to have had any effect yet, so I was thinking about taking a break from it….. but maybe I’ll keep going, I’ve only had four sessions so far x

Hi Bridget just read your blog fabulous I’ll link it to mine next time I e something to say. Which will be soon as I’m coming uo to 7  years post,

keep off Dr Google

! You’re doing really well. Keep at it with the acupuncture. Re dry mouth its the long lasting side effect that most of us still have. I use 1/2 an xyimelt every night it gets me through the night. If I have a nap and do t use one I still wake up really dry. I look at it it’s a small price to pay to see my family grow and thrive. James our grandson was 7  when I was diagnosed he’s 14now and next month he coming  to Spain with us for almost a month. Your granddaughters sound adorable enjoy every minute with them 

Hugs Hazel x

Thanks again Hazel - yes I still use a Xylimelt at night (forgot to mention that in the blog!), and since your messages today I’ve decided to carry on with the private Acupuncture until I get an appointment through Macmillan, nothing ventured nothing gained!

i’m not sure how to link your blog to mine but I’ll give it a go when I next post (I guess it’s just a case of pasting the link in?).

bridget

ps aren’t grandchildren just the best! ️

Yes just copy and paste. 

we can get xyimelts vat free if we get from a company called hope to sleep for future reference. 
sleep well Hazel x

https://www.hope2sleep.co.uk/

Scorpio2710 said:

I’ve decided to carry on with the private Acupuncture

I started my acupuncture around the first anniversary of my first RT

Had to look it up but from my blog

"The session lasted half an hour after taking a comprehensive history, and the needles didn’t hurt at all. By the time we had finished my nose started to run and by the time I got to the car I had a mouthful of saliva…..lots of saliva. I had to keep swallowing it! This lasted for two hours. I am overjoyed that we might just have something to build on."

How many sessions have you had and at what interval? If not often enough might have a bearing on why it's not working. Where is your practitioner placing the needles?