Struggling waiting diagnosis

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Need help & advise on how to cope & stop scrolling endlessly through google etc for answers.

Lump on side of neck, no other symptom (although now after looking through google I think I have every symptom under the sun). My mum first noticed the lump probably 2 months ago & it looked like a swollen lymph node. Then I went to doctor probably about 3 weeks ago as it became more noticeable & I began to fixate on it. He ran bloods that came back clear. MRI done & results came back next day marking it as suspicious. I asked the doctor what was seen in terms of suspicious & he just said it is on the lymph node & no clear reason can be seen, its about 2-3cm & is persistent. Referral done to ENT & I’m presuming it is going to be cancer which is terrifying me & I struggle already with anxiety which means I’m now in a downward loop.

Doctor did say from MRI scan no other lymph nodes seems to be elevated.

It does seem to be getting bigger slightly.

Any help or advise would be welcome, even reading some positive recovery stories does help.

  • All good luck for today my lovely. Fingers crossed Fingers crossed xxx 

  • Best wishes for today. Remember don’t leave until  you’re clear in your own mind. Dont  read anything into appointment being brought forward. Someone could have cancelled etc.

    Once you know what happening your mind d processes it all better it’s the fear of the unknown. 

    best wishes

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you, very interesting analysis, didn't realise the lower percentage was surgery only & you are right I know it includes everybody so is not specific to me. I like 55% better than the 30% at least. So 55% as a worst case scenario is not too bad I suppose.

  • Put ChatGPT away (take it off your phone

    Completely agree 

      

    If you tell Chat it’s wrong it will come back with a different answer …. That’s how accurate it is. 
    Chat is trained by gleaning from the internet. It picks up rubbish as well as the good stuff
    Personal experience here but not with cancer 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I was a pack a day smoker for decades, but my first cancer was p16 positive.  I owe that, to having a very wild sex life, and probably being repeatedly exposed to hpv orally, over and over again because I wore protection for penetrative stuff.  When the pet scan shown every consistency with it being cancer, the only thing they didn't know,  was what sort.  They assumed p16 negative because of my life long smoking habit.  Biopsy revealed p16 positive.  And you don't have to have had umpteen dozen partners a year,  all it takes is one dose at some time in your life,  and for you to wait, and incubate those pre cancerous cells though enough reproductions for your number to come up.  Bad luck is a main component to it all.  There is also a theory that smokers will be more prone this because it's proven now,  that once they contract the hpv p16 or p18 varient,  it stays in there system for longer,  because guess what,  smoking reduces the immune response to that virus,  among others.  So if you smoke, you have more chance of getting p16 positive cancer as well as negative.  This is someone I learned of only recently.

    I think there is a 50% chance you will be p16 positive.  In which case, you can start planning your 80th birthday straight after your diagnosis

  • Thats funny isn't it. You end up getting in an argument with it & it always changes its answer to agree with you. 

  • Sorry one more question. Has anybody had the lump totally change after the biopsy? The nurse put two needles or something in to take the samples. The samples seemed to be mostly fluid, I was expecting more matter type substance. Now the lump seems smaller or at least the swelling around it is smaller, before when I turned my head you would clearly see it now its barely noticeable, Is this normal? Surely everything points toward a less aggressive cancer or at least that what I'm going to try to hold onto today.