PBM during radiothrapy

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Hello, I am starting radiotherapy this week, with all the worries that it brings Blush. My doc mentioned PBM, a low frequency laser treatment that would help with RT side effects. I was wondering if any of you had this treatment. Is it helpful? How long does a session last and how many sessions a week are we supposed to do? Thanks a lot!

  • Hi. There are great results from this and you are very lucky to be offered it. I wasn’t unfortunately as it was in its early trial days. 
    It’s done after every RT session. 
    There are some here who did have it and it made a huge difference. I’m sure somebody will pop on to answer your question. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • And this from  

    oh, and afterwards, on the way out, I had the opportunity to try something, the name of which escapes me now.. but you stick this cling film covered 'lollipop' on your tongue for 1 min, under your tongue for 1 min, then you place this disc like thing on along your jaw, and lips, all for 1 min.. it is hoped that it reduces the after effects... we shall see, and hopefully I'll get the name tomorrow.. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks, Dani! I'm still a bit confused, as I wasn't offered PBM as part of the treatment, but my doc recommended a private clinic where I can have this treatment. I don't know yet how this is going to happen, as the clinic is in a different place and my doc told me to contact them tomorrow and see all the details. He said it is going to make a difference. 

    Could that clinic provide me with those "Lollipops" or should I go there after each RT treatment? It seems a bit complicated...

  • Where are you  

    PBM is provided usually within the RT department 

    I feel sending you elsewhere seems as if it will be very difficult to coordinate 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I would definitely recommend everyone to use PBM if they are offered it.. I didn't suffer with the mucositis that a lot of people suffer with, and I never lost my sense of taste.. you have it immediately after your radiotherapy session, it takes about 10 mins in total.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • I'm in Romania and it is not part of our regular treatment, at least not at my center. My doc recommended it - but I need to go to a different center. He said that even 3 sessions a week will make a big difference.

  • He said that even 3 sessions a week will make a big difference.

    Well if you can coordinate the two go for it. 
    Do let us know how you get on. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Wow this amazing I didn’t know anything about PBM. Last Feb 23 when I had RT I asked my consultant if there was anything I’m missing out on I would also be happy to go private. He did t mention thIs to me Disappointed maybe it wasn’t available last year. So happy for people that can access it x 

  • maybe it wasn’t available last year.

    It was but not widely.....

    The first trials were a disaster which must have held the whole thing back a long time but they were fine tuned and now quite a few hospitals provide it in house. 

    Emma Hallam is trialling home units as it can also be useful for late effects. There are red light therapy gizmos available on Amazon so I asked Thor about them was informed that the light emission is wrong. I did get an explanation but I'm not a physicist and it went right over my head.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge