Totally frustrating

Struth! You poor girl. You shouldn’t be left in charge of somebody who can’t communicate with you. Get on to your CNS to get the soonest appointment there is after the next MDT

What they should have done was bring your appointment back till after the MDT

If there are issues with margins they will likely plan radiotherapy for you unless the surgeon thinks he can go back and take more surgically. Those are the options but you need to know. 

Hi that’s so wrong on so many levels   Do as Dani says contact your cancer nurse and say you want an appointment it’s unfair to be left hanging in mid air. 
likely outcome would be radiotherapy if margins aren’t sufficient they may also add  chemo to mop upon lymph nodes. We’re here to help you treatments hard but it’s doable one day at a time

. Like Dani says the surgeon might get what’s left, try not to worry easy to say but not to do. There’s lots of us that’s have successfully completed radiotherapy. Hugs hope the sun helps. 

hazel 

Thank you. they are seeing me now on wednesday next week. I dont think they can do more surgery ive got great big hole at back.of throat and had a haemorrhage  in hospital. 

Lindielou said:

they are seeing me now on wednesday

Good. Get things moving. 
Lordy, you are in the wars! 
Hold tight. Our bodies are wonderful things. We overcome the most awful stuff and heal well in the end. So will you 

Having you lovely people on here really helps to keep the rest of us going. Just feel now like I've had all the surgery for nothing. if id gone down the radiotherapy route to start I'd nearly be at the end .

Hi you took the route that was offered to you,please  don’t have regrets wait until Wednesday see what that’s brings we’re all here for you. Remember don’t worry over thjngs yiuve no control over. 

Hazel xx

Hi Lindielou. Oh my you must be so frustrated. I can’t believe they left  you hanging. Try not to worry, youve come on so far. Hang in there. 
Big hugs

Sue x

Lindielou said:

Just feel now like I've had all the surgery for nothing.

No you haven’t. There was a chance that’s all you would need. At least the target for RT is much smaller. 

Good evening, Lindielou. It seems like it was a bit of a waste of time for you, as Dani said they should have waited until they had the results. Another annoying issue is when they change consultants/doctors who know nothing about you and often do not even read your notes. You have every reason to complain, especially with your inability to speak properly. Sometimes, they forget about people's feelings. Hope you managed to have some chill time in the sunshine. Take care.

                                                           Chris x 

Hi Lindielou

I had been keeping an eye out to see how you were doing.

Ridiculous to call you in with no results. Def get on to your CNS nurse to get that called forward. I think I felt at my lowest a couple of weeks after surgery - utterly miserable - but it will get better and quickly. I turned a sudden corner in terms of eating. 

"I've got half my throat missing, cant eat or speak properly” - I know! It’s like you could fit a couple of golf balls where your tonsils were. I promise it will get better and heal - the holes have completely healed. My voice took longer than expected but I am back speaking publicly for a job. 

I was told that if they were worried about margins they would first look at taking a bit more, probably with laser surgery. It was always worth the chance of trying to avoid RT and if you do have to go down that route the target will be clearer. 

my fingers are still crossed for you. Kate