Prognosis

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Have any of you w the p16 dx not had a good outcome or not s clear post scan??

  • I had a hotspot on PET which really p***ed me off but the area was biopsied and it was clean. It was a worrying month. These avid scans are not uncommon. 
    There are people here on immunotherapy where the cancer has either recurred or spread after initial treatment. But only a few. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • not had a good outcome

    That’s really uncommon. In fact rare. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • What did the spot end up being?  

  • Inflammation. Caused by the RT

    What has your husbands doctor said about prognosis? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • They said it’s a good prognosis good cure rate. Before his treatment they found a tiny module on lung (Nov 2024). Come to find out a prior ct of chest done in 2/2024 showed the same nodule that hasn’t grown but I still worry about that.  

  • tiny module

    We’ve talked about this already. I have two. Same thing. No increase in size. They are really common and due to some prior chest infection. 

    Not malignant and not likely to become so. 

    They said it’s a good prognosis good cure rate.

    Please try to believe them. They won’t lie to you and they are usually right. Remember they do this every day and they are good at it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi please try to stop worrying you can’t change the outcome but you can make yourself ill. HPV driven tumours respond well to treatment I’m here 7 years later I had tumour in my tonsil,with spread to  anterior wall of tonsil and soft palate added to mix 7 lymph nodes . I waited 18 weeks for my pet ct scan I knew that on day I started treatment oncologist wouldn’t scan any earlier. I finished treatment 8 weeks later flew to Spain had Christmas at home. I trusted my treatment and I didn’t worry that’s me I’m a glass half full girl. 
    The cure rate is in excess if 90% so I took those odds as being positive  yes I know a few who have had reoccurrences and treated with immunotherapy whi are still living a great life. 
    I also know a couple who sadly have died, but they have also had other co morbidities. 
    so,please try to stop worrying you’ll make yourself ill or drive yourself round the bend.  

    hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I know you’re right but I second guess everything I don’t know why. He was a smoker for so many years up until his dx. I’m a born worrier but believe me I am trying not to be. Ty for the reassurance 

  • I agree w u. I hate this for myself. Ty for the reassurance.  

  • He was a smoker for so many years up until his dx.

    Well that’s something to concentrate your energy and talents. Don’t let him start again. It’s a good reason for nagging him. Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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