Constipation

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Hi all, my husband is one week into chemo/radiation for hpv tonsil with lymph node’s. Over the weekend he has been suffering with constipation which has made him grumpy (hardly surprising). He is having his review tomorrow so I will ask then. He has had 2 fybogel today with little effect. He is drinking plenty of water but because he can’t go to the toilet he doesn’t want to eat. Any of you lovely people got any ideas x

Thanks Sue x

  • Hi. 

    Any of you lovely people got any ideas

    Ask for Movicol or Laxido. These are the standard laxatives we get from our teams 

    Thus is particularly important, I’d say imperative when he is on opiates later. 
    I managed on two a day. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thankyou, much appreciated I’ll ask tomorrow.

  • Hi ask for laxido or movicol  to be added to his prescription. On the back it tells you his many he can take in one go once he starts on opiates he will need to take 1 or 2 daily once I started on co coronal one per day sorted me. Yih can put in vis feeding tube if oh if he struggles eating drinking later into treatment. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Dulcolax will also help 'move' things along.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Hi Sue, as others have said, Laxido, Molaxole, or under various other brand names, but the active ingredient is Macrogol, and you can buy it over the counter, If it is likely to be an ongoing problem because of the treatment, you can get it on prescription. Unlike some laxative products, it really works, while not leaving you feeling that you dare not venture far from a toilet. I used Lactulose once, and to be honest that made me feel like that - frightened to fart in case it turned out to be more than that! (Apologies, but that really is how it felt.) Please give him my best wishes, and wish him all the best of luck. Radiotherapy can also affect your appetite, because a loss of taste affects how you feel about food. I had to decide to treat it as medicine - I knew I needed it to keep going, so I counted calories and protein to make sure I was getting enough. Before going to bed I would tally up, and sometimes my heart would sink when I realised I had to eat something else. Is he getting Fortisips or Ensure, or something on prescription, because they can really help. Even a hot chocolate with full cream milk and some cream on to can go down easily and make a difference.

    Tony - been there, done that, got the T-shirt

  • Thanks Tony, just got back from review. They’ve given him plenty of drinks as well as Laxido. Give that ago x

  • Warning,  the following is disgusting so don't read on if you're squeamish, but it may be helpful...

    During treatment I took all the laxatives by the clock, and plenty of fluids, but still got such bad constipation I had to be given an enema at the hospital. Another time it was so bad I felt as if there was a bowling ball in there, impacted and impossible to pass. In desperation I used a gloved finger to hook some out (luckily we had some surgical gloves in the house, and I knew that a nurse friend had done similar). I was then able to pass the rest. 

    Sorry everybody! But this may help somebody. 

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story

  • That's good. As it says in the instructions, he might need a few sachets over a short time to get things going, then regular use should keep things moving. I hope the eating goes okay, as staying strong is important. I found that the radiotherapy really tired me out.

  • I know that so well,I had to do the same and still feeling the consequences now after a movement !