Any tips for managing Lymphoedema/Fibrosis on the neck & throat?

I have an elastic neck garment - not sure if it’s the one you are talking about. It does make a difference when I wear it. I can’t wear it at night as it’s uncomfortable to sleep in, so mainly in the day when I’m not at work. 
The lymphoedema nurse gave it to me, but like you it comes and goes. My oncologist says it’s not too bad - so just living with it. 
Rachel 

Hi ,my lymphodema nurse supplied me with an elasticated neck garment which I wear at home ,it works just as good as massage. I'll try and find the link and get back to you 

Thanks Spider3, look forward to hearing from you :-)

Hi Debbie

I had lymphoedema after treatment and had one session with my specialist nurse - all I asked for was the correct techniques to manage the condition as my Oncologist was worse than useless as telling me what to do.  For a few months I religiously did MLD and used the comfiwave gaiter.  I still use the gaiter on occasions, but my lymphatic system seems to have reconnected and be working part way well now.  As to the gaiter, although expensive, I found it really good at helping to reduce the swelling.  I do find myself unconsciously doing MLD if I am sitting doing nothing in particular and I suspect that, now natural, MLD still helps me keep things under control.

Hi Debbie

I have Lympodema in lower face neck and under chin since chemoradiation. I’m 15mths post treatment and still have to manage it manually twice a day do2-3 hrs using a jade roller.It has improved slightly , I also see lymphodema nurse every fortnight.

Private Lymphodema nurses/practitioners can use deep oscillation machines( where current passages through gloves during massage) cost differs £40-£70 in my area. I have the massage then use the gentle kinesio tape which I wear for a couple of days find this works best for me. It seems you have to find what works for you out of the suppprts available .I would advise to see a professional for deep oscillation then show you how to put on the tape (first time if you decide to try this).

Tried the traditional garment( velcro fastening above head and comfiwave sadly didn’t help me but I think anything is worth a try as for some of us this is a lifelong condition and has to be managed daily.

For those who can afford it there is also a small device for deep oscillation ( sorry if misspellt i’m dyslexic) but around£3,500.

I use haddon healthcare to buy my tape around £14they also have the comfiwave neck garment .

Hope you find a way to mange your lymphodema

Debbie

Hi Debbie , 

This is the collar I use www.lymphshop.com/.../

Hi Debbie,

Thank you for your reply - my private practitioner uses the oscillating machine and had tried Kinesio taping too. She charges £70 per visit and is the only practitioner locally. It was she who recommended trying the Comfiwave from Haddon Healthcare as pictured by you.

Really appreciate your thoughts and sharing your experiences.

I will try the Comfiwave - as you say, anything is worth a try.

Debbie

xx

Hi Spider3,

That's the one - thank you! :-)

Debbie xx

Hi Debbie glad to hear you found someone my local practitioner is only£40 but they all charge different rates.

Good luck with the comfiwave x Hope the lymphodema improves over time 

Debbie