Hi guys,
Thought I’d share an update from my original thread back in Jan. Hit my first milestone this week with the completion of 5 weeks chemotherapy and week five of six radiotherapy. The cancer teams in the hospital have been amazing, but I’m feeling all the side effects from both treatments. Kept my MDT team up to date with issues and they have been brilliant. Nausea is a real issue and the constant horrible taste and mucus build up is a bit grim but am trying all the suggestions that you guys have been sharing. Lack of appetite has had a knock on effect with my weight so now on protein shakes/yogurts and porridge ( really missing proper food).
thanks again for your advice, encouragement it’s really been of help and gave me that boost when I’ve needed it.
Jay
Hi Jay. Congratulations the end is in sight. You sound as though you are coping really well as the treatment is hard. Those horrible side effects will gradually improve once treatment is finished but you just can't rush things. Sending you my very best wishes.
Lyn
Sophie66
Hi Jay
Almost there, well done, ask your team about different anti-emetics for nausea if the ones that you are using aren't effective .... Side effects usually intensify after the end of treatment.....then gradually improve make sure you have plenty of meds.
You should be back on solid food in a few weeks, appetite and taste will return in time.
Take care
Peter
Hi Jay. Well done just keep doing what you’re doing. Remember the first few weeks of recovery treatment continues to work so make sure you’ve meds in and take it one day at a time.
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Hazel,
thank you for messaging, I really appreciate it. I’ve two oncology appointments with my doctor ( this Thursday and the next) so I will definitely make sure I have plenty of pain relief for when the treatment ends also. The dietitian sent through repeat prescriptions for those nutritional supplements too.
Jay
Hi Peter,
thank you for your message and advice, I really appreciate it. I will def make sure I have plenty of pain relief for when the treatment ends. Looking forward to eating solid food eventually too.
take care
Jay
Well done Jay, you're nearly through it. The next month or so may be a bit grim but then you should start feeling a lot better. Lots of rest until then, a little daily walk if you can manage it, keep hydrated. Time to start thinking about a special summer holiday - ?
Sending love & solidarity
Catriona
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story
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