Post treatment

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3 weeks since finished 35 sessions of radiotherapy and still feeling so low. Taste is slowly returning but not hunger- worried as im now 74 kilo- from 92 !!

  • Hi

    It's a perennial problem with CRT

    I had just six weeks RT. My taste was acceptable at six months. That is to say I could tell what I was eating. I had no appetite at all and just ate to live. If I could swallow it I ate it. It's what we do. 

    I must say that if I didn't need to cook for my husband I could have gone days without bothering  to eat

    See if spicing your food up piques your interest. You can spice without adding heat. Play with texture if you can. Soft squashy sloppy foods don't push any buttons

    It's just time and after three weeks the radiation has only just peaked

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member

    Hi 

    I dropped from over 15 stone to just over 11 in 2-3 weeks during treatment, very worrying..... I was also feeling very low most days.... but it does pass, appetite and taste eventually returned, felt a lot better about the future, started exercising and going on holiday..... Our lot does improve but it takes time.....20 months post treatment and things are still improving.... tough treatment.

    Peter 

  • Hi It’s early days for you although you  might not think  so. Your treatment will have only just stopped working or indeed might still be .I took the attitude food is fuel and I ate to live. I got no,pleasure from food but I realised that nutrition and hydration were the keys to recovery. My hospital dietician said I needed 85 g of protein and 2500 calories plus 3 litres of water every day that was to maintain weight. Our bodies for a while seem to change our metabolism as well.I ate 6 smaller plate of food a day rather than trying z3 meals a day. I fortified food with double cream, eggs were a good source of protein and cheese also. Sauces made. With Philadelphia cream cheese. I forgot the traditional meat and 2 veg found what i could eat and some days ate it more than once. 
    blog below might help also reads this article I’ll pop a cook book link on as well 

    Remeber it doesn’t last forever ,I’m living a great life now  

    Hazel 

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    https://www.yumpu.com/en/document/view/66263025/cookbook-by-andrew-gaylor-head-and-neck-cancer-survivor-2022

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Omg 4 stone in 3 weeks

    that scares me 

    thought you had peg

  • Former Member
    Former Member in reply to Spencerbear

    Yes I had a PEG...

  • discovered that I also could not tolerate Ensure 2cal....it caused severe vomiting

     

    Don't stress too much. This sort of feed intolerance isn't that common. Most of us are fine on Ensures or Fortisips

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi

    Glad you've finished your radiotherapy. I've got to have 30 sessions, any advice welcome.

  • 3 weeks since finished 35 sessions of radiotherapy and still feeling so low

    You, body and soul, have been through an awful lot. Sometimes I think the body heals faster than the mind 

    There is an excellent piece from psychologist Dr Peter Harvey, who worked extensively with cancer patients

    It may help explain a lot. I copied it out and gave it to friends and family too

    After Treatment

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge