Hi everyone,
Well my last week of RT complete now ,the "Bell " has been Rang!!, but I think I'm ringing it to allow for next week's of pain to start ,not to celebrate my end of treatment!!
This week has been toughest up to now, very dry mouth, thick sheets of saliva of all colours ,but mostly brown hideous stuff that clings to anything ,sometimes use my finger to scrape it out !
Saturday and today have been the worse, getting to know my new pains and problems is so mentally upsetting.
I know I don't have the comfort blanket of going to RT each day now and I'm crossing back over to my Rotherham team ,whom I can't fault ,they have rang me and my wife over the treatment weeks just to make sure we are coping and if we needed anything. They are calling tomorrow and I have a list ready ,!!!
Thinking back on some of the old topics in here , I do admire the people who have been able to eat up to the end of their treatment ,at this point in my own journey ,I'm questioning why couldn't I ? Today I had to use gelclair to numb my throat to get a caplet down..
So my sips of water are nonexistent now ,as they make me cough ,which makes things,so sore at the back of my throat ,like putting cold water onto a flaming chip pan !!!
So I'm sat here trying to guess what's going to hit me next , even though I "rang," the bell . Sleep is a no go also, ended up downstairs at 2 am this morning with earpods on , still didn't do the trick !
So lack of sleep , pain , drugs ,you can guess how I'm feeling as majority of you have been here.
Sorry for a long yarn , but any thoughts that will help me through these next week's would be appreciated.
At the moment I'm scared ,that non of this is going away and that's it ,I hope it's not and sooner rather than later I will begin to see a tiny light starting to appear at the end of this gruesome tunnel .
Once again thanks for listening, the support I get from this group is amazing and I'm always glad I joined up!!
Best wishes to everyone!
Mark Xxx️
Hi Mark
well done so far
Sorry for a long yarn , but any thoughts that will help me through these next week's would be appreciated.
My advice would be to understand that you are unique. Anybody else’s experience is simply a guide.
Listen to your body. If you need to be up in the middle of the night then so be it. If you’re sleeping in the day then that’s fine. If you’re in pain take more analgesia. If you feel like a meltdown then do it.
This is your time. Be selfish. It passes. Honest. Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
